Compendium for Mammography Facilities

“PROJECT ACCESSIBILITY:  REMOVING BARRIERS FOR WOMEN WITH DISABILITIES” SUSAN G. KOMEN FOR THE CURE GRANT’S

DISABILITY AND CULTURAL AWARENESS COMPENDIUM
FOR MAMMOGRAPHY FACILITIES

 

Table of Contents

 

1.   “PROJECT ACCESSIBILITY:  REMOVING BARRIERS FOR WOMEN WITH DISABILITIES” (A REPLICABLE HEALTH PROMOTION PROGRAM)–SURVEY INSTRUMENTS, EVALUATION INSTRUMENTS, AND PROGRAM MATERIALS          

  • Fact Sheet/Brochure:  “Susan G. Komen for the Cureâ and American Association on Health & Disability (AAHD) Work Toward Increasing Mammography Screening for Women with Disabilities in the D.C. Metro Area,” American Association on Health and Disability
  • Fact Sheet/Brochure: “Tips for Mammography Staff: How to Serve Women with Disabilities More Effectively,” American Association on Health and Disability
  • Fact Sheet/Brochure:  “Tips for Women with Disabilities:  Getting Your Mammogram,” American Association on Health and Disability (in English and in Spanish)
  • “Introductory Letter to Mammography Facilities,” American Association on Health and Disability
  •  “Mammography Accessibility Facility Survey,” American Association on Health and Disability
  • “Suggested Intake Questions on Disabilities When Scheduling a Mammography Appointment,“ American Association on Health and Disability
  • “Post Survey Evaluation,” American Association on Health and Disability
  • “Introductory Letter for Breast Cancer Screening Survey for Women with Disabilities,” American Association on Health and Disability
  • “Breast Cancer Screening Survey for Women with Disabilities,” American Association on Health and Disability
  • Governmental Groups on People with Disabilities in the National Capitol Area (Washington, D.C. and Six Surrounding Areas Targeted by Susan G. Komen for the Cureâ), American Association on Health and Disability, 2009
  • “Health Exams”: Chapter 6 from A Health Handbook for Women with Disabilities by Jane Maxwell, Julia Watts Belser, and Darlena David, 2007

2.   MEETING THE NEEDS OF PEOPLE WITH DISABILITIES BY INTERACTING AND COMMUNICATING EFFECTIVELY

  • “Telehealth for persons with severe functional disabilities and their caregivers: facilitating self-care management in the home setting”. Psychol Serv. 2012 May;9(2):144-62. Abstract
  • “Non-verbal communication between Registered Nurses Intellectual Disability and people with an intellectual disability: an exploratory study of the nurse’s experiences”. Part 1. J Intellect Disabil. 2012 Mar;16(1):61-75. Abstract
  • “The role of the International Classification of Functioning, Disability, and Health and quality criteria for improving assistive technology service delivery in Europe”. Am J Phys Med Rehabil. 2012 Feb;91(13 Suppl 1):S55-61. Abstract
  • “Fold-A-Board communication device”. Top Stroke Rehabil. 2011 Jul-Aug;18(4):367-71. Abstract
  • “Opportunities for people with disabilities in the virtual world of Second Life”. Rehabil Nurs. 2010 Nov-Dec;35(6):254-9. Abstract
  • “Exploring communication assistants as an option for increasing communication access to communities for people who use augmentative communication”. Augment Altern Commun. 2010 Mar;26(1):48-59. Abstract
  • “Communicating about the experience of pain and fatigue in disability”. Qual Life Res. 2010 Mar;19(2):243-51. Abstract
  • “Environmental factors that influence communication between people with communication disability and their healthcare providers in hospital: a review of the literature within the International Classification of Functioning, Disability and Health (ICF) framework”. Int J Lang Commun Disord. 2008 Nov-Dec;43(6):601-32. Abstract
  • ”To the Health Worker:  Learning about Disability” from A Health Handbook for Women with Disabilities by Jane Maxwell, Julia Watts Belser, and Darlena David, 2007

3.  DOMESTIC AND INTERNATIONAL RESOURCES ON DISABILITIES

 (We encourage the reader to visit the URLs in the comprehensive lists of websites below     that focus on issues pertaining to disability and health; we offer these lists as guides to further information.  We hope you will contact AAHD if you know of any additional resources you would like us to consider including in the domestic listing developed by AAHD.)

  • Disability Information – Benefits, Facts and Resources for Persons with Disabilities, Disabled World News – Disabled World category on disability offers news and articles concerning disabilities including health issues: http://www.disabled-world.com/disability/#ixzz2DRrz7VPu
  • International Organizations, Books and Other Printed Materials, and Internet-Based Resources Health Handbook for Women with Disabilities by Jane Maxwell, Julia Watts Belser, and Darlena David, 2007

4.   RESEARCH ON WOMEN WITH DISABILITIES AND BREAST HEALTH

  •  “Cervical and breast cancer-screening knowledge of women with developmental disabilities”. Intellect Dev Disabil. 2012 Apr;50(2):79-91. Abstract
  • “State-Level Differences in Breast and Cervical Cancer Screening by Disability Status: United States, 2008.”  Womens Health Issues. 2009 Nov-Dec;19(6):406-14.  Abstract
  •  “Breast cancer screening barriers and disability”.  Rehabil Nurs. 2012 Mar-Apr;37(2):74-9. Abstract
  •  “Florida mammographer disability training vs needs”. Radiol Technol. 2012 Mar;83(4):337-48. Abstract
  •  “Access to cancer screening for women with mobility disabilities”. J Cancer Educ. 2012 Mar;27(1):75-82. Abstract
  •  “The assessment of the likelihood of mammography usage with relevant factors among women with disabilities”. Res Dev Disabil. 2012 Jan-Feb;33(1):136-43. Epub 2011 Oct 4. Abstract
  •  “Disparities in routine breast cancer screening for medicaid managed care members with a work-limiting disability”. Medicare Medicaid Res Rev. 2011 Nov 4;1(4). Abstract
  •  “Implications of Mobility Impairment on the Diagnosis and Treatment of Breast Cancer”. J Womens Health (Larchmt). 2011 January; 20(1): 45–52
  • “Supporting women with intellectual disabilities to access breast cancer screening: a healthcare professional perspective”. Eur J Cancer Care (Engl). 2011 May;20(3):412-20. doi: 10.1111/j.1365-2354.2010.01221.x. Epub 2010 Sep 6. Abstract
  •  “Predictors of mammography use in older women with disability: the patients’ perspectives”. Med Oncol. 2011 Dec;28 Suppl 1:S8-14. Epub 2010 Sep 21. Abstract
  • “Disability and health-related quality of life after breast cancer surgery: relation to impairments”. South Med J. 2010 Jan;103(1):37-41. Abstract
  • “Breast awareness within an intellectual disability setting”. Eur J Oncol Nurs. 2010 Sep;14(4):328-36. Epub 2010 May 20. Abstract
  • “Expected values for steps/day in special populations”. Prev Med. 2009 Aug;49(1):3-11. Epub 2009 May 4. Abstract
  • “Managed care enrollment and chronically disabled women with breast cancer”. Am J Manag Care. 2008 Aug;14(8):514-20. Abstract
  • “Barriers to Adherence to Screening Mammography among Women with Disabilities.”  Am J Public Health. 2009 Oct 15. [Epub ahead of print]  Abstract
  • “Repeat Mammography Screening Among Unmarried Women with and without a Disability.”  Womens Health Issues. 2009 Sep 21. [Epub ahead of print]  Abstract
  • “Breast and Cervical Cancer Screening Practices among Disabled Women Aged 40-75: Does Quality of the Experience Matter?”  J Womens Health (Larchmt). 2008 Oct;17(8):1321-9. Abstract
  • “Understanding Barriers to Participation in Mammography by Women with Disabilities.”  American Journal of Health Promotion. 2008; 22(6):  381-5. Abstract
  • “Disability and Receipt of Clinical Preventive Services among Women.”  Womens Health Issues.  2006; 16(6):  286-296.  Abstract
  • “The Influence of Type and Severity of Mental Illness on Receipt of Screening Mammography.”  J Gen Intern Med.  2006; 21(10): 1097-1104.  Abstract
  • “Preventive health screening for breast and cervical cancer and osteoporosis in women with physical disabilities”. Fam Community Health. 2006 Jan-Mar;29(1 Suppl):35S-43S. Abstract
  • “Women with disabilities: general practitioners and breast cancer screening”. Am J Prev Med. 2005 Feb;28(2):215-20. Abstract

5. WOMEN FROM VARIOUS CULTURES AND BREAST HEALTH

  • “Spiritual well-being and quality of life in Iranian women with breast cancer undergoing radiation therapy”. Support Care Cancer. 2012 Nov 10.  Abstract
  • “Understanding barriers to Malaysian women with breast cancer seeking help”. Asian Pac J Cancer Prev. 2012;13(8):3723-30. Abstract
  • “Health belief model and practice of breast self-examination and breast cancer screening in Iranian women”. Breast Cancer. 2012 Sep 19.  Abstract
  • “Development of the Thai breast cancer belief scale for Thai immigrants in the United States”. J Nurs Meas. 2012;20(2):123-41. Abstract
  • “Breast cancer in Pacific Islander women: overcoming barriers to screening and treatment”. Nurs Womens Health. 2012 Feb-Mar;16(1):26-35. Abstract
  • “The relationship between religiosity and cancer screening among Vietnamese women in the United States: the moderating role of acculturation”. Women Health. 2012;52(3):292-313. Abstract
  • “Knowledge, attitudes, beliefs, behaviour and breast cancer screening practices in Ghana, West Africa”. Pan Afr Med J. 2012;11:28. Epub 2012 Feb 17.
  • “Breast cancer screening practices among Asian Americans and Pacific Islanders”. Am J Health Behav. 2012 Sep;36(5):711-22. Abstract
  • “Social determinants of breast cancer screening in urban primary care practices: a community-engaged formative study”. Womens Health Issues. 2012 Sep;22(5):e429-38. Abstract
  •  “Determinants of the use of breast cancer screening among women workers in urban Mexico”. Prev Chronic Dis. 2008 Apr;5(2):A50. Abstract

6.   MEETING THE NEEDS OF PEOPLE FROM VARIOUS CULTURES BY INTERACTING AND COMMUNICATING EFFECTIVELY

  • “The Compelling Need for Cultural and Linguistic Competence” from the Georgetown University Center for Child & Human Development’s National Center for Cultural Competence  http://www11.georgetown.edu/research/gucchd/nccc/foundations/need.html
  • “Language Differences as a Barrier to Quality and Safety in Health Care: The Joint Commission Perspective”. J Gen Intern Med. 2007 November; 22(Suppl 2): 360–361. Abstract
  • “Lost in Translation: Language Barriers, Literacy, Communication, and Quality in Health Care” by Dr. Glenn Flores, presented at Surgeon General’s Workshop on Improving Health Literacy, 2007 http://www.surgeongeneral.gov/topics/healthliteracy/panel2.htm

7.   RESOURCES ON CULTURAL COMPETENCY

(We encourage the reader to visit the URLs in the comprehensive list of websites below that focuses on issues pertaining to cultural competency and health; we offer this list as a guide to further information.  We hope you will contact AAHD if you know of any additional resources you would like us to consider including in this listing developed by AAHD.)

8.   RESEARCH ON CULTURAL COMPETENCY AND BREAST HEALTH

  • “Challenges and implementation of a women’s breast health initiative in rural Kashmir”. Breast. 2011 Apr;20 Suppl 2:S46-50. Epub 2011 Feb 15. Abstract
  • “Development and evaluation of a web-based breast cancer cultural competency course for primary healthcare providers.”  BMC Med Educ. 2011; 11: 59.
  •  “Using community-based participatory research to ameliorate cancer disparities.” Health Soc Work. 2010 Nov;35(4):302-9. Abstract
  •  “Assess the effects of culturally relevant intervention on breast cancer knowledge, beliefs, and mammography use among Korean American women”. J Immigr Minor Health. 2010 Aug;12(4):586-97. Epub 2009 Apr 17
  • “Barriers to Breast Cancer Screening Among Haitian Immigrant Women in Little Haiti, Miami.”  J Immigr Minor Health. 2010 Jan 21. [Epub ahead of print]  Abstract
  • “Randomized Trial of a Lay Health Advisor and Computer Intervention to Increase Mammography Screening in African American Women.”  Cancer Epidemiol Biomarkers Prev. 2010 Jan;19(1):201-10.
  • “Tailored Lay Health Worker Intervention Improves Breast Cancer Screening Outcomes in Non-Adherent Korean-American Women.” Health Educ Res. 2009 Apr;24(2):318-29. Epub 2008 May 7.  Abstract
  • “Barriers and Facilitators Related to Mammography Use among Lower Educated Mexican Women in the USA.”  Soc Sci Med. 2009 Mar;68(5):832-9. Epub 2009 Jan 17.  Abstract
  •  “Pre- and postintervention differences in acculturation, knowledge, beliefs, and stages of readiness for mammograms among Korean American women”. Oncol Nurs Forum. 2009 Mar;36(2):E80-92.
  •  “Perspectives of African American, Amish, Appalachian And Latina women on breast and cervical cancer screening: implications for cultural competence”. J Health Care Poor Underserved. 2008 Feb;19(1):56-74.
  •  “A critical review of theory in breast cancer screening promotion across cultures”. Annu Rev Public Health. 2008;29:351-68.
  • “Development and Evaluation of a Culturally Tailored Educational Video: Changing Breast Cancer-Related Behaviors in Chinese Women.”  Health Educ Behav. 2008 Dec;35(6):806-20. Epub 2007 Jun 29.  Abstract
  • “Designing Culturally and Linguistically Appropriate Health Interventions: The ‘Life Is Precious’ Hmong Breast Cancer Study.”  Health Educ Behav. 2007 Feb;34(1):140-53. Epub 2006 May 31.  Abstract
  • “Patient Satisfaction with Different Interpreting Methods: A Randomized Controlled Trial.”  J Gen Intern Med. 2007 Nov;22 Suppl 2:312-8.  Abstract
  • “Culturally competent training program: a key to training lay health advisors for promoting breast cancer screening. Health Educ Behav. 2007 Dec;34(6):928-41. Epub 2007 Oct 26. Abstract
  • “Considering the culture of disability in cultural competence education. Acad Med. 2005 Jul;80(7):706-12.  Abstract