Available here are the December 20 & 21 statements on the Congressional 10 year PCORI reauthorization: statements by PCORI and the Friends of PCORI (AAHD is a member of the Friends). […]
Policy Updates
The American Association on Health and Disability plays an important role in disability policy and advocacy at the national level. AAHD strives to ensure that the needs of people with disabilities receive attention and respect on the national legislative agenda. AAHD is involved in numerous disability coalitions and networks that address the needs of people with disabilities. Please visit the Policy site to learn more about our activities in this area. AAHD staff maintain an active role in Washington, DC to ensure that health promotion and wellness for people with disabilities is on the disability and healthcare agenda. AAHD staff have positions on the APHA, Disability Section, Executive Council; the CDC, NCBDDD, Executive Committee; Consortium for Citizens with Disabilities-CCD and serve on the National Health Council; Coalition for Health Funding; Disability Rehabilitation and Research Coaltion; Coalition for Whole Health, Patient Care Primary Care Collaborative; and other coalitions advocating for policy that works towards reducing health disparities between people with disabilities and the general population and reducing the incidence of secondary conditions in children and adults with disabilities.
Advisory Committee on Heritable Disorders in Newborns and Children
AAHD has joined a coalition, led by the March of Dimes, requesting the HHS Secretary to resume the work of the ACHDNC. The December 19 letter is here: PDF. […]