AAHD and the Lakeshore Foundation are among 48 organizations endorsing Senator Sanders (VT; chair, Senate Committee on HELP) and 5 Senate co-sponsors introduced Long COVID Moonshot legislation (S. 4964). The legislation was organized with the Patient Led Research Collaborative. Available here are: (1) Senator Sanders statement; (2) Section-by-Section summary; (3) S. 4964 Leg Text; (4) […]
Policy Updates
The American Association on Health and Disability plays an important role in disability policy and advocacy at the national level. AAHD strives to ensure that the needs of people with disabilities receive attention and respect on the national legislative agenda. AAHD is involved in numerous disability coalitions and networks that address the needs of people with disabilities. Please visit the Policy site to learn more about our activities in this area. AAHD staff maintain an active role in Washington, DC to ensure that health promotion and wellness for people with disabilities is on the disability and healthcare agenda. AAHD staff have positions on the APHA, Disability Section, Executive Council; the CDC, NCBDDD, Executive Committee; Consortium for Citizens with Disabilities-CCD and serve on the National Health Council; Coalition for Health Funding; Disability Rehabilitation and Research Coaltion; Coalition for Whole Health, Patient Care Primary Care Collaborative; and other coalitions advocating for policy that works towards reducing health disparities between people with disabilities and the general population and reducing the incidence of secondary conditions in children and adults with disabilities.
Social Security Form #827 for Disability Eligibility– Disability Movement Questions
AAHD and the Lakeshore Foundation have joined the Consortium for Constituents with Disabilities (CCD), Task Force on Social Security, supporting SSA’s revision of the #827 form but raising a serious of questions. With different ideas about the balance between timely and effective sharing of information required by SSA vs sensitive information and privacy, CCD raises […]
Medicare Inpatient Rehabilitation Facility (IRF) Final CMS Rules
CMS has finalized rules governing payment for IRF services. The rules include a Quality Reporting Program. The web link to the CMS fact sheet is here: Fiscal Year 2025 Inpatient Rehabilitation Facility Prospective Payment System Final Rule (CMS-1804-F) | CMS Also here is the rule summary by the Coalition To Preserve Rehabilitation (CPR) that AAHD […]
Medicare Revised Primary Care Payment (S. 4338) (3)
AAHD and the Lakeshore Foundation have submitted comments with No Health without Mental Health to Senators Whitehouse (RI) and Cassidy (LA) on their proposed legislation (S. 4338) and RFI to revise the Medicare Payment of Primary Care. We also joined and signed the Families USA led coalition submission. Available here are the August 2 publicly […]
FDA Banning of Electric Shock Devices as Treatment (2)
AAHD and the Lakeshore Foundation have joined 157 organizations led by ASAN opposing a House Appropriations Committee “rider” that would prohibit the FDA from banning electric shock devices as treatment for IDD including autism. On July 11 we posted a CCD letter opposing the rider. The rider was subsequently withdrawn in committee. The July 8 […]
Disability Equity Data – White House RFI (4).
AAHD is a member of the National Health Council (NHC). NHC submitted a statement to the White House Office of Science and Technology RFI on disability equity data. We earlier posted the AAHD-Lakeshore Foundation submission, the Disability and Rehabilitation Research Coalition (DRRC) (AAHD is a DRRC member) submission, and the Consortium for Constituents with Disabilities […]
Disability Equity Data – White House RFI (3)
AAHD and the Lakeshore Foundation have joined the Consortium for Constituents with Disabilities (CCD) submission to the White House Office of Science and Technology RFI on disability equity data. We earlier posted the AAHD-Lakeshore submission, the Disability and Rehabilitation Research Coalition (DRRC) submission, and the June 28 WH OSTP webinar slides on the RFI. We […]
Medicare Revised Primary Care Payment (S. 4338) (2)
AAHD and the Lakeshore Foundation have submitted comments to Senators Whitehouse (RI) and Cassidy (LA) on their proposed legislation (S. 4338) and RFI to revise the Medicare Payment of Primary Care. Available here is the July 15 Families USA led coalition submission. Our prior comments led by No Health without Mental Health and the Senators […]
Disability Equity Data – White House RFI (2)
AAHD is a member of the Disability and Rehabilitation Research Coalition (DRRC). DRRC has submitted comments to the White House Office of Science and Technology RFI on disability equity data. We earlier posted our July 14 AAHD-Lakeshore submission and the June 28 WH OSTP webinar slides on the RFI. The DRRC July 15 submission is […]
Medicare Revised Primary Care Payment – Including Behavioral Health Integration (S. 4338)
AAHD and the Lakeshore Foundation have submitted comments to Senators Whitehouse (RI) and Cassidy (LA) on their proposed legislation (S. 4338) and RFI to revise the Medicare Payment of Primary Care., including the integration of behavioral health. Available here are: the No Health without Mental Health led seven national organization partners July 15 submission; the […]