NCBDDD Scientific Publication Repository

Below is a partial list of CDC Notable Scientific Publications since 2010. Please visit www.cdc.gov/ncbddd/index.html to view additional research articles and scientific publications on topics such as Attention Deficit Disorder and Hyperactivity (ADHD), Autism Spectrum Disorder (ASD), Birth Defects, Cerebral Palsy, Developmental Disabilities, Disability and Health, Down Syndrome, Fetal Alcohol Spectrum Disorders (FASD), Fragile X Syndrome, Hearing Loss, Learn the Signs Act Early, , Intellectual Disability, Jaundice and Kernicterus, Muscular Dystrophy, Newborn Screening, Safety and Children with Disabilities, Spina Bifida, Tourette Syndrome, and Women and Disabilities.

Latest research in the field of disability and health research is available on the Disability and Health Journal website at www.disabilityandhealthjnl.com The Disability and Health Journal (DHJO) is the official journal of the American Association on Health and Disability (AAHD) and is published quarterly by Elsevier. The DHJO is a scientific, scholarly, and multidisciplinary journal for reporting original research contributions that advance knowledge in the broad field of disability and health. Topics maybe related to global health, quality of life, and specific health conditions as they relate to disability. The AAHD Health Promotion Resource Center also hosts research abstracts from multiple sources and can be viewed at https://aahd.us/resource-center/

2020 NCBDDD Notable Scientific Publications

Abe K, et al. Higher rates of bleeding and use of treatment products among young boys compared to girls with von Willebrand diseaseexternal icon. Am J Hematol. 2020;95(1):10–17.

Aluc A, et al. Using surveillance to determine the number of individuals with sickle cell disease in California and Georgia, 2005–2016external icon. Pediatr Hematol Oncol. 2020;1–5.

Almli LM, et al. Infant mortality attributable to birth defects—United States, 2003–2017. MMWR Morb Mortal Wkly Rep. 2020;69:25–29.

Anderson KN, et al. Maternal use of specific antidepressant medications during early pregnancy and the risk of selected birth defectsexternal icon. JAMA Psychiatry. 2020;e202453.

Badawy S, et al. Association between clinical outcomes and metformin use in adults with sickle cell disease and diabetes mellitusexternal icon. Blood Adv. 2019;3(21):3297–3306.

Bender M, et al. Newborn screening practices for alpha-thalassemia detection in the United States. MMWR Morb Mortal Wkly Rep. 2020;69(36):1269–1272.

Bitsko RH, et al. Indicators of social competence and social participation among US children with Tourette syndrome.external icon J Child Neurol. 2020;35(9):612–620.

Chu DI, et al. Kidney function surveillance in the National Spina Bifida Patient Registry: a retrospective cohort studyexternal icon. J Urol. 2020;204(3):578–586.

Cree RA, et al. Frequent mental distress among adults, by disability status, disability type, and selected characteristics—United States, 2018. MMWR Morb Mortal Wkly Rep. 2020;69(36):1238–1243.

Danielson ML, et al. Community-based prevalence of externalizing and internalizing disorders among school-aged children and adolescents in four geographically dispersed school districts in the United Statesexternal icon. Child Psychiatry Hum Dev. 2020 Jul 30.

Dietz PM, et al. National and state estimates of adults with autism spectrum disorderexternal icon. J Autism Dev Disord. 2020;50(12):4258–4266.

Do TQN, et al. Fragile X syndrome-associated emergency department visits in the United States, 2006–external icon Am J Intellect Dev Disabil. 2020;125(2):103–108.

Downing KF, et al. Adverse pregnancy conditions among privately insured women with and without congenital heart defectsexternal icon. Circ Cardiovasc Qual Outcomes. 2020;13(6):e006311.

Ellington S, et al. Characteristics of women of reproductive age with laboratory-confirmed SARS-CoV-2 infection by pregnancy status—United States, January 22–June 7, 2020. MMWR Morb Mortal Wkly Rep. 2020;69:769–775.

England LJ, et al. Alcohol use and co-use of other substances among pregnant females aged 12–44 years—United States, 2015–2018. MMWR Morb Mortal Wkly Rep. 2020;69(31):1009–1014.

Gupta S, et al. Potential of the Community Counts Registry to characterize rare bleeding disorders.external icon 2019;25(6):1045–1050.

Gurvitz M, et al. Characteristics of adults with congenital heart defects in the United Statesexternal icon. J Am Coll Cardiol. 2020;76(2):175–182.

Hollis ND, et al. Physical activity types among US adults with mobility disability, Behavioral Risk Factor Surveillance System, 2017.external icon Disabil Health J. 2020;13(3):100888.

Khavjou OA, et al. National health care expenditures associated with disability.external icon Med Care. 2020;58(9):826–832.

Leeb RT, et al. Support for transition from adolescent to adult health care among adolescents with and without mental, behavioral, and developmental disorders—United States, 2016–2017. MMWR Morb Mortal Wkly Rep. 2020;69:1156–1160.

Lindgren S, et al. Disability, hospital care, and cost: utilization of emergency and inpatient care by a cohort of children with intellectual and developmental disabilities.external icon J Pediatr. 2020 Sep 2.

Maenner MJ, et al. Prevalence of autism spectrum disorder among children aged 8 years—Autism and Developmental Disabilities Monitoring Network, 11 sites, United States, 2016. MMWR Surveill Summ. 2020;69(No. SS-4):1–12.

Majumdar S, et al. Parvovirus B19 infection in sickle cell disease: An analysis from the CDC Hemoglobinopathy Blood Surveillance Projectexternal icon. Transfus Med. 2020;30(3):226–230.

McKnight-Eily LR, et al. Screening for alcohol use and brief counseling of adults—13 states and the District of Columbia, 2017. MMWR Morb Mortal Wkly Rep. 2020;69(10);265–270.

Ospina ML, et al. Zika virus disease and pregnancy outcomes in Colombiaexternal icon. N Engl J Med. 2020;383(6):537–545.

Panepinto J, et al. Coronavirus disease among persons with sickle cell disease, United States, March 20–May 21, 2020. Emerg Infect Dis. 2020;26(10):2473–2476.

Payne A, et al. Evaluation of pre-analytic heat treatment protocol used in the CDC Nijmegen-Bethesda assay for heat inactivation of extended half-life hemophilia treatment productsexternal icon. 2020;26(1):e28–e30.

Pruitt SM, et al. Racial and ethnic disparities in fetal deaths—United States, 2015–2017. MMWR Morb Mortal Wkly Rep. 2020;69:1277–1282.

Reefhuis J, et al. Neural tube defects in pregnancies among women with diagnosed HIV infection—15 jurisdictions, 2013–2017. MMWR Morb Mortal Wkly Rep. 2020;69:1–5.

Robinson LR, et al. Trends over time and jurisdiction variability in Supplemental Security Income and State Supplementary Payment programs for children with disabilitiesexternal icon. J Public Health Manag Pract. 2020;26(Suppl 2):S45–S53.

Schieve L, et al. Evaluation of CDC’s hemophilia surveillance program: Universal Data Collection (1998–2011) and Community Counts (2011–2019).external icon MMWR Surveill Summ. 2020;69(5):1–18.

Shaw KA, et al. Early identification of autism spectrum disorder among children aged 4 years—Early Autism and Developmental Disabilities Monitoring Network, six sites, United States, 2016. MMWR Surveill Summ. 2020;69(No. SS-3):1–11.

Smith KA, et al. Differences in continence rates in individuals with spina bifida based on ethnicityexternal icon. J Pediatr Rehabil Med. 2019;12(4):361–368.

Smoots AN, et al. Population-based surveillance for birth defects potentially related to Zika virus infection—22 states and territories, January 2016–June 2017. MMWR Morb Mortal Wkly Rep. 2020;69:67–71.

Soucie J, et al. Occurrence rates of haemophilia among males in the United States based on surveillance conducted in specialized haemophilia treatment centres. external icon 2020;26(3):487–493.

Tinker SC, et al. Use of benzodiazepine medications during pregnancy and potential risk for birth defects, National Birth Defects Prevention Study, 1997–2011external icon. Birth Defects Res. 2019;111(10): 613–620.

Wallace B, et al. Characterization of individuals with selected muscular dystrophies from the expanded pilot of the Muscular Dystrophy Surveillance, Tracking and Research Network (MD STARnet) in the United Statesexternal icon. Birth Defects Res. 2020 Jul 24.

Wiggins LD, et al. Disparities in documented diagnoses of autism spectrum disorder based on demographic, individual, and service factors.external icon Autism Res. 2020;13(3):464–473.

Wiggins LD, et al. Wandering among preschool children with and without autism spectrum disorderexternal icon. J Dev Behav Pediatr. 2020;41(4):251–257.

Zhao G, et al. Prevalence of disability and disability types by urban-rural county classification—U.S., 2016.external icon Am J Prev Med. 2019;57(6):749–756.

2019 NCBDDD Notable Scientific Publications

Abe K, Kuklina EV, Hooper WC, Callaghan WM. Venous thromboembolism as a cause of severe maternal morbidity and mortality in the United Statesexternal icon. Semin Perinatol. 2019;43(4):200–204.

Andrews JG, Lamb MM, Conway K, Street N, Westfield C, Ciafaloni E, Matthews D, Cunniff C, Pandya S, Fox D. Diagnostic accuracy of phenotype classification in Duchenne and Becker muscular dystrophy using medical record dataexternal icon. J Neuromuscul Dis. 2018;5(4):481–495.

Badawy SM, Payne AB, Rodeghier MJ, Liem RI. Exercise capacity and clinical outcomes in adults followed in the Cooperative Study of Sickle Cell Disease (CSSCD)external icon. Eur J Haematol. 2018;101(4):532–541.

Barger B, Squires J, Greer M, Noyes-Grosser D, Martin Eile J, Rice C, Shaw EM, Surprenant KS, Twombly E, London S, Zubler J, Wolf RB. State variability in diagnosed conditions for IDEA Part C eligibilityexternal icon. Infants & Young Children. 2019;32(4):231–244.

Chen MY, Rose CE, Qi YP, Williams JL, Yeung LF, Berry RJ, Hao L, Cannon MJ, Crider KS. Defining the plasma folate concentration associated with the red blood cell folate concentration threshold for optimal neural tube defects prevention: A population-based, randomized trial of folic acid supplementationexternal icon. Am J Clin Nutr. 2019;109(5):1452–1461.

Christensen DL, Maenner MJ, Bilder D, Constantino JN, Daniels J, Durkin MS, Fitzgerald RT, Kurzius-Spencer M, Pettygrove SD, Robinson C, Shenouda J, White T, Zahorodny W, Pazol K, Dietz P. Prevalence and characteristics of autism spectrum disorder among children aged 4 years—Early Autism and Developmental Disabilities Monitoring Network, seven sites, United States, 2010–2014. MMWR Surveill Summ. 2019;68(2):1–19.

Cordero C, Schieve LA, Croen LA, Engel SM, Maria Siega-Riz A, Vladutiu CJ, Seashore CJ, Daniels JL. Neonatal jaundice in association with autism spectrum disorder and developmental disorderexternal icon. J Perinatol. 2019 Aug 6. 2020;40:219–225.

Cree RA, Bitsko RH, Robinson LR, Holbrook JR, Danielson ML, Smith C, Kaminski JW, Kenney MK, Peacock G. Health care, family, and community factors associated with mental, behavioral, and developmental disorders and poverty among children aged 2–8 years—United States, 2016. MMWR Morb Mortal Wkly Rep. 2018;67(50):1377–1383.

Crider KS, Devine O, Qi YP, Yeung LF, Sekkarie A, Zaganjor I, Wong E, Rose CE, Berry RJ. Systematic review and Bayesian meta-analysis of the dose-response relationship between folic acid intake and changes in blood folate concentrationsexternal icon. Nutrients. 2019;11(1).

Croen LA, Qian Y, Ashwood P, Zerbo O, Schendel D, Pinto-Martin J, Fallin MD, Levy S, Schieve LA, Yeargin-Allsopp M, Sabourin KR, Ames JL. Infection and fever in pregnancy and autism spectrum disorders: Findings from the Study to Explore Early Developmentexternal icon. Autism Res. 2019;12(10):1551–1561.

Cyrus AC, Royer J, Carroll DD, Courtney-Long EA, McDermott S, Turk MA. Anti-hypertensive medication use and factors related to adherence among adults with intellectual and developmental disabilitiesexternal icon. Am J Intellect Dev Disabil. 2019;124(3):248–262.

Denny CH, Acero CS, Naimi TS, Kim SY. Consumption of alcohol beverages and binge drinking among pregnant women aged 18–44 years—United States, 2015–2017. MMWR Morb Mortal Wkly Rep. 2019;68:365–368.

Doyle KE, Sionean C, Paz-Bailey G, Hollis ND, Kanny D, Wejnert C; NHBS Study Group. High prevalence of disability and HIV risk among low socioeconomic status urban adults, 17 U.S. citiesexternal icon. Disabil Health J. 2019 Aug 13. 2020;13:100834.

Frey MT, Meaney-Delman D, Bowen V, Yazdy MM, Watkins SM, Thorpe PG, Honein MA. Surveillance for emerging threats to pregnant women and infantsexternal icon. J Womens Health (Larchmt). 2019;28(8):1031–1036.

Ghandour RM, Sherman LJ, Vladutiu CJ, Ali MM, Lynch SE, Bitsko RH, Blumberg SJ. Prevalence and treatment of depression, anxiety, and conduct problems in US childrenexternal icon. J Pediatr. 2019;206:256–267.e3.

Gilbertson KE, Jackson HL, Dziuban EJ, Sherman SL, Berry-Kravis EM, Erickson CA, Valdez R. Preventive care services and health behaviors in children with fragile X syndromeexternal icon. Disabil Health J. 2019;12(4):564–573.

Glidewell J, Grosse SD, Riehle-Colarusso T, Pinto N, Hudson J, Daskalov R, Gaviglio A, Darby E, Singh S, Sontag M. Actions in support of newborn screening for critical congenital heart disease—United States, 2011–2018. MMWR Morb Mortal Wkly Rep. 2019;68:107–111.

Gupta S, Acharya S, Roberson C, Lail A, Soucie JM, Shapiro A. Potential of the Community Counts Registry to characterize rare bleeding disordersexternal icon. Haemophilia. 2019;25(6):1045-1050.

Kotzky K, Allen JE, Robinson LR, Satterfield-Nash A, Bertolli J, Smith C, Ornelas Pereira I, Faria e Silva Santelli AC, Peacock G. Depressive symptoms and care demands among primary caregivers of young children with evidence of congenital Zika virus infection in Brazilexternal icon. J Dev Behav Pediatr. 2019;40(5):344–353.

Lind JN, Ailes EC, Alter CC, Fornoff JE, Broziceyic P, Garcia Saavedra LF, Tomedi LE, Gambatese M, Carroll B, Orantes L, Brennan M, Horne AA, Reefhuis J. Leveraging existing birth defects surveillance infrastructure to build neonatal abstinence syndrome surveillance systems—Illinois, New Mexico, and Vermont, 2015–2016. MMWR Morb Mortal Wkly Rep. 2019;68:177–180.

Mainous AG 3rd, Carek PJ, Lynch K, Tanner RJ, Hulihan MM, Baskin J, Coates TD. Effectiveness of clinical decision support based intervention in the improvement of care for adult sickle cell disease patients in primary careexternal icon. J Am Board Fam Med. 2018;31(5):812–816.

Okolo AI, Soucie JM, Grosse SD, Roberson C, Janson IA, Allen M, Shapiro AD. Population-based surveillance of haemophilia and patient outcomes in Indiana using multiple data sourcesexternal icon. Haemophilia. 2019;25:456–462.

Olson SM, Delaney A, Jones AM, Carr CP, Liberman RF, Forestieri NE, Tong VT, Gilboa SM, Honein MA, Moore CA, Cragan JD. Updated baseline prevalence of birth defects potentially related to Zika virus infectionexternal icon. Birth Defects Res. 2019;111(13):938–940.

Ortel TL, Arnold K, Beckman M, Brown A, Reyes N, Saber I, Schulteis R, Singh BP, Sitlinger A, Thames EH. Design and implementation of a comprehensive surveillance system for venous thromboembolism in a defined region using electronic and manual approachesexternal icon. Appl Clin Inform. 2019;10(3):552–562.

Nash R, Riley C, Paramsothy P, Gilbertson K, Raspa M, Wheeler A, Dziuban EJ, Peacock G. A description of the educational setting among individuals with fragile X syndromeexternal icon. Am J Intellect Dev Disabil. 2019;124(1):57–76.

Payne AB, Miller CH, Ellingsen D, Driggers J, Boylan B, Bean CJ. Reagent substitution in the chromogenic Bethesda assay for factor VIII inhibitorsexternal icon. Haemophilia. 2019;25:e342–e344.

Perou R, Robinson LR, Danielson ML, Claussen A, Visser SN, Scott KG, Beckwith L, Katz L, Smith DC. The Legacy for Children™ randomized control trial: Effects on cognition through third grade for young children experiencing povertyexternal icon. J Dev Behav Pediatr. 2019;40(4):275–284.

Pipe SW, Sabatino DE, Nugent DJ, Hooper WC, Soucie JM, Hoots WK, DiMichele DM. Executive Summary of the NHLBI State of the Science (SOS) Workshop: Overview and next steps in generating a national blueprint for future research on factor VIII inhibitorsexternal icon. Haemophilia. 2019;25(4):610–615.

Radke T, Paulukonis S, Hulihan MM, Feuchtbaum L. Providers’ perspectives on treating patients with thalassemiaexternal icon. J Pediatr Hematol Oncol. 2019;41:e421–e426.

Raesima MM, Ogbuabo CM, Thomas V, Forhan SE, Gokatweng G, Dintwa E, Petlo C, Motswere-Chirwa C, Rabold EM, Tinker SC, Odunsi S, Malima S, Mmunyane O, Modise T, Kefitlhile K, Dare K, Letebele M, Roland ME, Moore CA, Modi S, Williamson DM. Dolutegravir use at conception—additional surveillance data from Botswanaexternal icon. N Engl J Med. 2019;381:885–887.

Rubenstein E, Croen L, Lee LC, Moody E, Schieve LA, Soke GN, Thomas K, Wiggins L, Daniels J. Community-based service use in preschool children with autism spectrum disorder and associations with insurance statusexternal icon. Res Autism Spectr Disord. 2019;66:101410.

Sahay KM, Smith T, Conway KM, Romitti PA, Lamb MM, Andrews J, Pandya S, Oleszek J, Cunniff C, Valdez R. A review of MD STARnet’s research contributions to pediatric-onset dystrophinopathy in the United States; 2002–2017external icon. J Child Neurol. 2019;34(1):44–53.

Shapira SK, Tian LH, Aylsworth AS, Elias ER, Hoover-Fong JE, Meeks NJL, Souders MC, Tsai AC, Zackai EH, Alexander AA, Yeargin-Allsopp M, Schieve LA. A Novel Approach to Dysmorphology to Enhance the Phenotypic Classification of Autism Spectrum Disorder in the Study to Explore Early Developmentexternal icon. J Autism Dev Disord. 2019;49(5):2184–2202.

Short TD, Stallings EB, Isenburg J, O’Leary L, Yazdy MM, Bohm MK, Ethen M, Chen X, Tran T, Fox DJ, Fornoff J, Forestieri N, Ferrell E, Ramirez CM, Kim J, Shi J, Cho SJ, Duckett K, Nelson N, Zielke K, St. John K, Martin B, Clark C, Huynh M, Benusa C, Reefhuis J. Gastroschisis trends and ecologic link to opioid prescription rates—United States, 2006–2015. MMWR Morb Mortal Wkly Rep. 2019;68(2):31–36.

Tanabe P, Spratling R, Smith D, Grissom P, Hulihan M. CE: Understanding the complications of sickle cell diseaseexternal icon. Am J Nurs. 2019;119(6):26–35.

Tanaka ST, Paramsothy P, Thibadeau J, Wiener JS, Joseph DB, Cheng EY, Tu D, Austin C, Koh CJ, Wallis MC, Walker WO, Smith KA, Routh JC, Baum MA. Baseline urinary tract imaging in infants enrolled in the UMPIRE protocol for children with spina bifidaexternal icon. J Urol. 2019;201(6):1193–1198.

Theis KA, Steinweg A, Helmick CG, Courtney-Long E, Bolen JA, Lee R. Which one? What kind? How many? Types, causes, and prevalence of disability among U.S. adultsexternal icon. Disabil Health J. 2019;12(3):411–421.

Tinker SC, Gilboa SM, Moore CA, Waller K, Simeone RM, Kim SY, Jamieson DJ, Botto LD, Reefhuis J. Specific birth defects in pregnancies of women with diabetes: National Birth Defects Prevention Study, 1997–2011external icon. Am J Obstet Gynecol. 2019 Aug 24. 2019;222:176.

Wang Y, Ouyang L, Dicianno BE, Beierwaltes P, Valdez R, Thibadeau J, Bolen J. Differences in length of stay and costs between comparable hospitalizations of patients with spina bifida with or without pressure injuriesexternal icon. Arch Phys Med Rehabil. 2019;100(8):1475–1481.

Wolicki SB, Bitsko RH, Danielson ML, Holbrook JR, Zablotsky B, Walkup JT, Woods DW, Mink JW. Children with Tourette syndrome in the United States: Parent-reported diagnosis, co-occurring disorders, severity, and influence of activities on ticsexternal icon. J Dev Behav Pediatr. 2019;40(6):407–414.

Zhao G, Okoro CA, Hsia J, Garvin WS, Town M. Prevalence of disability and disability types by urban-rural county classification—U.S., 2016external icon. Am J Prev Med. 2019;57(6):749–756.

2018 NCBDDD Notable Scientific Publications

Abouk R, Grosse SD, Ailes EC, Oster ME. Association of US state implementation of newborn screening policies for critical congenital heart disease with early infant cardiac deaths. JAMA. 2017;318(21):2111-2118. https://www.ncbi.nlm.nih.gov/pubmed/29209720

Alabi NB, Thibadeau J, Wiener JS, et al. Surgeries and health outcomes among patients with spina bifida. Pediatrics. 2018;142(3):e20173730. https://www.ncbi.nlm.nih.gov/pubmed/30158199

Birnkrant D, Bushby K, Bann CM, et al. Diagnosis and management of Duchenne muscular dystrophy, part 1: Diagnosis, and neuromuscular, rehabilitation, endocrine, and gastrointestinal and nutritional management. Lancet Neurol. 2018;17(3):251-267.

Anderson KN, Ailes EC, Danielson M, et al. Attentiondeficit/hyperactivity disorder medication prescription claims among privately insured women aged 15–44 years — United States, 2003–2015. MMWR Morb Mortal Wkly Rep. 2018;67(2):66–70. https://www.cdc.gov/mmwr/volumes/67/wr/mm6702a3.htm

Anderson KN, Dutton AC, Broussard CS, et al. ADHD medication use during pregnancy and risk for selected birth defects: National Birth Defects Prevention Study, 1998-2011. J Atten Disord. 2018 Mar. https://www.ncbi.nlm.nih.gov/pubmed/29519207

Anderst JD, Carpenter SL, Presley R, et al. Relevance of abusive head trauma to intracranial hemorrhages and bleeding disorders. Pediatrics. 2018;141(5):e20173485. https://www.ncbi.nlm.nih.gov/pubmed/29695583

Badawy SM, Payne AB, Rodeghier MJ, Liem RI. Exercise capacity and clinical outcomes in adults followed in the Cooperative Study of Sickle Cell Disease (CSSCD). Eur J Haematol. 2018;101(4):532- 541. https://www.ncbi.nlm.nih.gov/pubmed/29999202

Baio J, Wiggins L, Christensen DL, et al. Prevalence of autism spectrum disorder among children aged 8 years — Autism and Developmental Disabilities Monitoring Network, 11 sites, United States, 2014. MMWR Surveill Summ. 2018;67(6):1-23. https://www.ncbi.nlm.nih.gov/pubmed/29701730

Birnkrant D, Bushby K, Bann CM, et al. Diagnosis and management of Duchenne muscular dystrophy, part 2: Respiratory, cardiac, bone health, and orthopaedic management. Lancet Neurol. 2018;17(4):347-361. https://www.ncbi.nlm.nih.gov/pubmed/29395990

Birnkrant D, Bushby K, Bann CM, et al. Diagnosis and management of Duchenne muscular dystrophy, part 3: Primary care, emergency management, psychosocial care, and transitions of care across the lifespan. Lancet Neurol. 2018;17(5):445-455. https://www.ncbi.nlm.nih.gov/pubmed/29398641

Bitsko RH, Holbrook JR, Ghandour RM, et al. Epidemiology and impact of health care providerdiagnosed anxiety and depression among US children. J Dev Behav Pediatr. 2018;39(5):395-403. https://www.ncbi.nlm.nih.gov/pubmed/29688990

Boylan B, Miller CH. Effects of pre-analytical heat treatment in factor VIII (FVIII) inhibitor assays on FVIII antibody levels. Haemophilia. 2018;24(3):487-491. https://www.ncbi.nlm.nih.gov/pubmed/29461004

Chen M, Riehle-Colarusso T, Yeung LF, Smith C, Farr SL. Children with Heart Conditions and Their Special Health Care Needs — United States, 2016. MMWR Morb Mortal Wkly Rep. 2018;67:1045–1049. https://www.cdc.gov/mmwr/volumes/67/wr/mm6738a1.htm

Courtney-Long EA, Stevens AC, Carroll DD, GriffinBlake S, Omura JD, Carlson SA. Primary care providers’ level of preparedness for recommending physical activity to adults with disabilities. Prev Chronic Dis. 2017;14:E114. https://www.cdc.gov/pcd/issues/2017/17_0328.htm

Crider KS, Qi YP, Devine O, Tinker SC, Berry RJ. Modeling the impact of folic acid fortification and supplementation on red blood cell folate concentrations and predicted neural tube defect risk in the United States: have we reached optimal prevention? Am J Clin Nutr. 2018;107(6):1027-1034. https://www.ncbi.nlm.nih.gov/pubmed/29767673

Croen LA, Qian Y, Ashwood P, et al. Family history of immune conditions and autism spectrum and developmental disorders: Findings from the Study to Explore Early Development. Autism Res. 2018 Aug 10. https://www.ncbi.nlm.nih.gov/pubmed/30095240

Danielson ML, Bitsko RH, Ghandour RM, Holbrook JR, Kogan MD, Blumberg SJ. Prevalence of parentreported ADHD diagnosis and associated treatment among U.S. children and adolescents, 2016. J Clin Child Adolesc Psychol. 2018;47(2):199-212. https://www.ncbi.nlm.nih.gov/pubmed/29363986

Delaney A, Mai C, Smoots A, et al. Population-Based Surveillance of Birth Defects Potentially Related to Zika Virus Infection — 15 States and U.S. Territories, 2016. MMWR Morb Mortal Wkly Rep. 2018;67(3):91-96. https://www.cdc.gov/mmwr/volumes/67/wr/mm6703a2.htm

Deng X, Finitzo T, Aryal S. Measuring early hearing detection and intervention (EHDI) quality across the continuum of care. EGEMS (Wash DC). 2018;6(1):18. https://egems.academyhealth.org/articles/10.5334/egems.239/

Glidewell J, Book W, Raskind-Hood C, et al. Population-based surveillance of congenital heart defects among adolescents and adults: surveillance methodology. Birth Defects Res. 2018;1-9. https://www.ncbi.nlm.nih.gov/pubmed/30394691

Hinton CF, Kraus LE, Richards TA, Fox MH, Campbell VA. The guide to community preventive services and disability inclusion. Am J Prev Med. 2017;53(6):898- 903. https://www.ncbi.nlm.nih.gov/pubmed/28869093

Hulihan M, Hassell KL, Raphael JL, Smith-Whitley K, Thorpe P. CDC Grand Rounds: Improving the lives of persons with sickle cell disease. MMWR Morb Mortal Wkly Rep. 2017;66(46):1269-1271. https://www.cdc.gov/mmwr/volumes/66/wr/mm6646a2.htm

Kempton CL, Payne AB. HLA-DRB1-factor VIII binding is a risk factor for inhibitor development in nonsevere hemophilia: A case-control study. Blood Adv. 2018;2(14):1750-1755. http://www.bloodadvances.org/content/2/14/1750?sso-checked=true

Kruger J, Brener N, Leeb R, Wolkin A, Avchen RN, Dziuban E. School district crisis preparedness, response, and recovery plans — United States, 2006, 2012, and 2016. MMWR Morb Mortal Wkly Rep. 2018;67:809-814. https://www.cdc.gov/mmwr/volumes/65/wr/mm6536a2.htm

Kruger J, Hinton CF, Sinclair LB, Silverman B. Enhancing individual and community disaster preparedness: Individuals with disabilities and others with access and functional needs. Disabil Health J. 2018;11(2):170-173. https://www.ncbi.nlm.nih.gov/pubmed/29287974

Manco-Johnson MJ, Byams VR, Recht M, et al. Community counts: Evolution of a national surveillance system for bleeding disorders. Am J Hematol. 2018;93(6):E137-E140. https://www.ncbi.nlm.nih.gov/pubmed/29473207

McClung N, Glidewell J, Farr SL. Financial burdens and mental health needs in families of children with congenital heart disease. Congenit Heart Dis. 2018;13(4):554-562. https://www.ncbi.nlm.nih.gov/pubmed/29624879

McDermott S, Royer J, Cope T, et al. Using Medicaid data to characterize persons with intellectual and developmental disabilities in five U.S. states. Am J Intellect Dev Disabil. 2018;123(4):371-381. https://www.ncbi.nlm.nih.gov/pubmed/29949427

Miller CH, Boylan B, Shapiro AD, Lentz SR, Wicklund BM, Hemophilia Inhibitor Research Study Investigators. Limit of detection and threshold for positivity of the Centers for Disease Control and Prevention assay for factor VIII inhibitors. J Thromb Haemost. 2017;15(10):1971-1976. https://www.ncbi.nlm.nih.gov/pubmed/28795528

Okoro C, Hollis ND, Cyrus AC, Griffin-Blake S. Prevalence of disabilities and health care access by disability status and type among adults – United States, 2016. MMWR Morb Mortal Wkly Rep. 2018;67:882-887. https://www.cdc.gov/mmwr/volumes/67/wr/mm6732a3.htm

Polen KD, Gilboa SM, Hills S, et al. Update: Interim guidance for preconception counseling and prevention of sexual transmission of Zika virus for men with possible Zika virus exposure — United States, August 2018. MMWR Morb Mortal Wkly Rep. 2018;67(31):868-871. https://www.cdc.gov/mmwr/volumes/67/wr/mm6731e2.htm

Rampersad AG, Boylan B, Miller CH, Shapiro A. Distinguishing lupus anticoagulants from factor VIII inhibitors in haemophilic and non-haemophilic patients. Haemophilia. 2018;24(5):807-814. https://www.ncbi.nlm.nih.gov/pubmed/30004159

Raut JR, Simeone RM, Tinker SC, et al. Proportion of orofacial clefts attributable to recognized risk factors. Cleft Palate Craniofac J. 2018 Jan. https://www.ncbi.nlm.nih.gov/pubmed/29727221

Rice ME, Galang RR, Roth NM, et al. Vital Signs: Zika-associated birth defects and neurodevelopmental abnormalities possibly associated with congenital Zika virus infection — U.S. territories and freely associated states, 2018. MMWR Morb Mortal Wkly Rep. 2018;67(31):858-867. https://www.cdc.gov/mmwr/volumes/67/wr/mm6731e1.htm

Rubenstein E, Young JC, Croen LA, et al. Brief report: Maternal opioid prescription from preconception through pregnancy and the odds of autism spectrum disorder and autism features in children. J Autism Dev Disord. 2018 Sept 20. https://jhu.pure.elsevier.com/en/publications/brief-report-maternal-opioid-prescription-from-preconception-thro

Satterfield-Nash A, Kotzy K, Allen J, et al. Health and development at age 19–24 months of 19 children who were born with microcephaly and laboratory evidence of congenital Zika virus infection during the 2015 Zika virus outbreak — Brazil, 2017. MMWR Morb Mortal Wkly Rep. 2017;66:1347–1351. https://www.cdc.gov/mmwr/volumes/66/wr/mm6649a2.htm

Schieve LA, Tian LH, Drews-Botsch C, et al. Autism spectrum disorder and birth spacing: Findings from the Study to Explore Early Development (SEED). Autism Res. 2018;11(1):81-94. https://www.ncbi.nlm.nih.gov/pubmed/29164825

Soke GN, Rosenberg SA, Rosenberg CR, Vasa RA, Lee LC, DiGuiseppi C. Brief report: Self-injurious behaviors in preschool children with autism spectrum disorder compared to other developmental delays and disorders. J Autism Dev Disord. 2018;48(7):2558-2566. https://www.ncbi.nlm.nih.gov/pubmed/29429009

Soucie JM, Monahan PE, Kulkarni R, Konkle BA, Mazepa MA, U.S. Hemophilia Treatment Center Network. The frequency of joint hemorrhages and procedures in nonsevere hemophilia A vs. B. Blood Adv. 2018;2(16):2136-2144. http://www.bloodadvances.org/content/2/16/2136/tab-article-info

Ullman M, Zhang QC, Grosse SD, Recht M, Soucie JM, Hemophilia Treatment Center Network Investigators. Prophylaxis use among males with haemophilia B in the United States. Haemophilia. 2017;23(6):910-917. https://www.ncbi.nlm.nih.gov/pubmed/28780772

2017 NCBDDD Notable Scientific Publications

Barger, B. D., Campbell, J., & Simmons, C. (2017). The relationship between regression in autism spectrum disorder, epilepsy, and atypical epileptiform EEGs: A meta-analytic review. Journal of Intellectual & Developmental Disability, 42(1), 45-60. http://www.tandfonline.com/doi/abs/10.3109/13668250.2016.1208812?journalCode=cjid20

Beckman M, et al. Strategies and Partnerships Toward Prevention of Healthcare-Associated Venous Thromboembolism. J Hosp Med. 2016;11 Suppl 2:S5-S7.

Bennett, K. J., McDermott, S., Mann, J. R., & Hardin, J. (2017). Receipt of recommended services among patients with selected disabling conditions and diabetes. Disability and Health Journal, 10(1), 58–64. http://doi.org/http://dx.doi.org/10.1016/j.dhjo.2016.09.001 http://doi.org/http://dx.doi.org/10.1016/j.dhjo.2016.09.001

Boylan B, et al. Survey of the Anti-Factor IX Immunoglobulin Profiles in Patients with Hemophilia B Using a Fluorescence-Based Immunoassay. J Thromb Haemost. 2016;14(10):1931-40.

Chaturvedi S, et al. Genome-Wide Association Study to Identify Variants Associated with Acute Severe Vaso-Occlusive Pain in Sickle Cell Anemia. Blood. 2017;130(5):686-8.

Danielson M, et al. A National Profile of Attention-Deficit Hyperactivity Disorder Diagnosis and Treatment Among US Children Aged 2 to 5 Years. J Dev Behav Peds. 2017;38(7):455-64.

Deguchi H, et al. Low Level of Plasma Sphingolipid, Glucosylceramide, Is Associated with Thrombotic Diseases. Res Pract Thromb Haemost. 2017;1(1):33-40.

Durkin MD, et al. Autism Spectrum Disorder Among U.S. Children (2002-2010): Socioeconomic, Racial, and Ethnic Disparities. Am J Public Health. 2017;107(11):1818-26.

Dziuban EJ, et al. A Child’s Health is the Public’s Health: Progress and Gaps in Addressing Pediatric Needs in Public Health Emergencies. Am J Public Health. 2017;107(S2):S134-S137.

Grosse S, et al. CDC Grand Rounds: Newborn Screening for Hearing Loss and Critical Congenital Heart Disease. MMWR Morb Mortal Wkly Rep. 2017;66(33):888-90.

Hinton CF, et al. The Guide Community Preventive Services and Disability Inclusion. Am J Prev Med. 2017;53(6):898-903.

Honein MA, et al. Birth Defects Among Fetuses and Infants of US Women With Evidence of Possible Zika Virus Infection During Pregnancy. JAMA. 2017;317(1):59-68.

Howley M, et al. Thyroid Medication Use and Birth Defects in the National Birth Defects Prevention Study. Birth Defects Res. 2017;109(18):1471-81.

Kaminski J, et al. Evidence Base Update for Psychosocial Treatments for Disruptive Behaviors in Children. J Clin Child Adolesc Psychol. 2017;46(4):477-99.

Kulkarni R, et al. Complications of Haemophilia in Babies (First Two Years of Life): A Report from the Centers for Disease Control and Prevention Universal Data Collection System. Haemophilia. 2017;23(2):207-14.

Latimer R, et al. Secondary Conditions Among Males With Duchenne or Becker Muscular Dystrophy. J Child Neurol. 2017;32(7):663-70.

Lind J, et al. Maternal Use of Opioids During Pregnancy and Congenital Malformations: A Systematic Review. Pediatrics. 2017;139(6):e20164131.

Lynch M, et al. Making Decisions About Medication Use During Pregnancy: Implications for Communication Strategies. Matern Child Health J. 2017 Sep 12.

Maenner MJ, et al. Development of a Machine Learning Algorithm for the Surveillance of Autism Spectrum Disorder. PLoS One. 2016;11(12):e0168224.

Manco-Johnson M, et al. Prophylaxis Usage, Bleeding Rates and Joint Outcomes of Hemophilia 1999 – 2010: A Surveillance Project. Blood. 2017;129(17):2368-74.

McKnight-Eily LR, et al. Screening for Excessive Alcohol Use and Brief Counseling of Adults — 17 States and the District of Columbia, 2014 MMWR Morb Mortal Wkly Rep. 2017;66(12):313-9.

Miller CH, et al. Limit of Detection and Threshold for Positivity of the Centers for Disease Control and Prevention Assay for Factor VIII Inhibitors. J Thromb Haemost. 2017;15(10):1971-6.

Oduyebo T, et al. Update: Interim Guidance for Health Care Providers Caring for Pregnant Women with Possible Zika Virus Exposure — United States (Including U.S. Territories), July 2017 MMWR Morb Mortal Wkly Rep. 2017;66(29):781-93.

Parra-Saavedra M, et al. Serial Head and Brain Imaging of 17 Fetuses with Confirmed Zika Virus. Obstet Gynecol. 2017;130(1):207-12.

Paulukonis S, et al. Emergency Department Utilization by Californians with Sickle Cell Disease, 2005-2014. Pediatr Blood Cancer. 2017;64(6):e26390.

Phillips M, et al. PhenX Measures for Phenotyping Rare Genetic Conditions. Genet Med. 2017;19(7):834-37.

Reynolds MR, et al. Vital Signs: Update on Zika Virus-Associated Birth Defects and Evaluation of All U.S. Infants with Congenital Zika Virus Exposure – U.S. Zika Pregnancy Registry, 2016. MMWR Morb Mortal Wkly Rep. 2017;66(13):366-73.

Riley C, et al. The Future of Fragile X Syndrome: CDC Stakeholder Meeting Summary. Pediatrics. 2017;139(Suppl. 3):s147-52.

Rosenthal J, et al. Folate Deficiency Is Prevalent in Women of Childbearing Age in Belize and Is Negatively Affected by Coexisting Vitamin B-12 Deficiency: Belize National Micronutrient Survey 2011. J Nutr. 2017 Jun;147(6):1183-93

Routh JC, et al. Bladder Reconstruction Rates Differ among Centers Participating in National Spina Bifida Patient Registry. J Urol. 2017;199:1-6.

Schieve LA, et al. Maternal and Paternal Infertility Disorders and Treatments and Autism Spectrum Disorder: Findings From the Study to Explore Early Development. J Autism Dev Disord. 2017;47(12):3994-4005.

Shapiro-Mendoza CK, et al. Pregnancy Outcomes After Maternal Zika Virus Infection During Pregnancy — U.S. Territories, January 1, 2016–April 25, 2017. MMWR Morb Mortal Wkly Rep. 2017;66(23):615-21.

Smith MG, et al. Capture-recapture Methodology to Study Rare Conditions Using Surveillance Data for Fragile X Syndrome and Muscular Dystrophy. Orphanet J Rare Dis. 2017;12(1):76.

Soke GN, et al. Factors Associated with Self-injurious Behaviors in Children with Autism Spectrum Disorder: Findings From Two Large National Samples. J Autism Dev Disord. 2017;47(2):285-96.

Soucie J, et al. The Effects of Joint Disease, Inhibitors and Other Complications on Health-Related Quality of Life Among Males with Severe Haemophilia A in the United States. Haemophilia. 2017;23(4):e287-e293.

Srivaths L, et al. Differences in Bleeding Phenotype and Provider Interventions in Postmenarchal Adolescents When Compared to Adult Women with Bleeding Disorders and Heavy Menstrual Bleeding. Haemophilia. 2017 Sep 5. [Epub ahead of print]

Steele CB, et al. Prevalence of Cancer Screening Among Adults with Disabilities, United States, 2013. Prev Chronic Dis. 2017;14:e09.

Thibadeau J, et al. Understanding the Natural Progression of Spina Bifida: Prospective Study. JMIR Res Protoc. 2017;6(9):e180.

Tyler ET, et al. Behavioral Health Integration in Pediatric Primary Care: Considerations and Opportunities for Policymakers, Planners, and Providers. Milbank-Supported Report. 2017.

Wiggins LD, et al. Homogeneous Subgroups of Young Children with Autism Improve Phenotypic Characterization in the Study to Explore Early Development. J Autism Dev Disord. 2017;47(11):3634-45.

Xinling X, et al. A Longitudinal Assessment of Adherence to Breast and Cervical Cancer Screening Recommendations Among Women With and Without Intellectual Disability. Prev Med. 2017;100:167-72.

2016 NCBDDD Notable Scientific Publications

Barger, B., Rice, C., Simmons, C. & Wolf, R. (2016). A Systematic Review of Part C Early Identification Studies. Topics on Early Childhood Special Education, 1-13. http://journals.sagepub.com/doi/abs/10.1177/0271121416678664?journalCode=teca

Bennett, K. J., McDermott, S., Mann, J. R., & Hardin, J. W. (2016). Preventive Service Utilization among People Who Are Blind or Have Low Vision. Journal of Visual Impairment & Blindness, 110(2), 89–102. https://www.afb.org/jvib/jvibabstractNew.asp?articleid=jvib100203

Bitsko, Rebecca H, Holbrook, Joseph R., Robinson, Lara R., Kaminski, Jennifer W., Ghandour, Reem, Smith, Camille , Peacock, Georgina. Health Care, Family, and Community Factors Associated with Mental, Behavioral, and Developmental Disorders in Early Childhood — United States, 2011–2012. Weekly / March 11, 2016 / 65(9);221–226. http://www.cdc.gov/mmwr/volumes/65/wr/mm6509a1.htm?s_cid=mm6509a1_w

Christensen DL, Baio J, Van Naarden Braun K, Bilder D, Charles J, Constantino JN, Daniels J, Durkin MS, Fitzgerald RT, Kurzius-Spencer M, Lee LC, Pettygrove S, Robinson C, Schulz E, Wells C, Wingate MS, Zahorodny W, Yeargin-Allsopp M., Prevalence and characteristics of autism spectrum disorder among children aged 8 years—Autism and Developmental Disabilities Monitoring Network, 11 sites, United States, 2012. MMWR Surveillance Summary. April 2016.

Christensen DL, Bilder DA, Zahorodny W, Pettygrove S, Durkin MS, Fitzgerald RT, Rice C, Kurzius-Spencer M, Baio J, Yeargin-Allsopp M., Prevalence and characteristics of autism spectrum disorders among 4-year-old children in the Autism and Developmental Disabilities Monitoring Network. Journal of Developmental and Behavioral Pediatrics. January 2016.

Dasgupta S, et al. Patterns in Zika virus testing and infection, by report of symptoms and pregnancy status — United States, January 3–March 5, 2016. MMWR Morb Mortal Wkly Rep. 2016 Apr 22;65(15);395-399. https://www.cdc.gov/mmwr/volumes/65/wr/mm6515e1.htm

Dawson AL, Ailes EC, Gilboa SM, et al. Antidepressant Prescription Claims Among Reproductive-Aged Women With Private Employer-Sponsored Insurance — United States 2008–2013. MMWR Morb Mortal Wkly Rep 2016;65place_Holder_For_Early_Release:41–46. DOI: http://dx.doi.org/10.15585/mmwr.mm6503a1.

Dawson AL, et al. Twinning and major birth defects, National Birth Defects Prevention Study, 1997-2007. J Epidemiol Community Health. 2016 Nov;70(11):1114-21. http://jech.bmj.com/content/70/11/1114

DiGuiseppi CG, Daniels JL, Fallin DM, Rosenberg SA, Schieve LA, Thomas KC, Windham GC, Goss CW, Soke GN, Currie DW, Singer AB, Lee LC, Bernal P, Croen LA, Miller LA, Pinto-Martin JA, Young LM, Schendel DE., Demographic profile of families and children in the Study to Explore Early Development (SEED): Case-control study of autism spectrum disorder.
Disability and Health Journal. January 2016.

Gilboa SM, et al. Congenital heart defects in the United States: Estimating the magnitude of the affected population in 2010. Circulation. 2016 Jul 12;134(2):101-9. https://www.ncbi.nlm.nih.gov/pubmed/27382105

Green PP, McKnight-Eily LR, Tan CH, Mejia R, Denny CH. Vital Signs: Alcohol-Exposed Pregnancies — United States, 2011–2013. MMWR Morb Mortal Wkly Rep 2016; 65place_Holder_For_Early_Release: 91–97. DOI: http://dx.doi.org/10.15585/mmwr.mm6504a6

Grosse, Scott D., Berry, Robert J., Tilford, J. Mick, Kucik, James E., Waitzman, Norman J. Retrospective Assessment of Cost Savings From Prevention Folic Acid Fortification and Spina Bifida in the U.S. Am J Prev Med May 2016 Volume 50, Issue 5, Supplement 1, Pages S74–S80. http://www.ajpmonline.org/article/S0749-3797(15)00689-3/abstract

Hagan JF, et al. Neurobehavioral disorder associated with prenatal alcohol exposure. Pediatrics. 2016 Sep 27;138(4):e20151553. http://pediatrics.aappublications.org/content/138/4/e20151553

Holbrook JR, Cuffe SP, Cai B, Visser SN, Forthofer MS, Bottai M, Ortaglia A, McKeown RE. Persistence of Parent-Reported ADHD Symptoms From Childhood Through Adolescence in a Community Sample. Journal of Attention Disorders 2016;Jan:20(1):11-20. http://www.ncbi.nlm.nih.gov/pubmed/24994874

Ladd-Acosta C, Shu C, Lee BK, Gidaya N, Singer A, Schieve LA, Schendel DE, Jones N, Daniels JL, Windham GC, Newschaffer CJ, Croen LA, Feinberg AP, Daniele Fallin M., Presence of an epigenetic signature of prenatal cigarette smoke exposure in childhood.
Environmental Research. January 2016.

Maenner MJ, Blumberg SJ, Kogan MD, Christensen D, Yeargin-Allsopp M, Schieve LA.,Prevalence of cerebral palsy and intellectual disability among children identified in two U.S. National Surveys, 2011-2013. Annals of Epidemiology. March 2016.

Marchetta CM, Hamner HC. Blood folate concentrations among women of childbearing age by race/ethnicity and acculturation, NHANES 2001-2010. Maternal Child Nutrition 2016;Jan:12(1):39-50. http://www.ncbi.nlm.nih.gov/pubmed/24934272

Matthew E. Oster, Susan W. Aucott, Jill Glidewell, Jesse Hackell, Lazaros Kochilas, Gerard R. Martin, Julia Phillippi,Nelangi M. Pinto, Annamarie Saarinen, Marci Sontag, Alex R. Kemper. Lessons Learned From Newborn Screening for Critical Congenital Heart Defects. Pediatrics. 2016 May;137(5). pii: e20154573. doi: 10.1542/peds.2015-4573. Epub 2016 Apr 15. http://pediatrics.aappublications.org/content/early/2016/04/13/peds.2015-4573

O’Connor MJ, Quattlebaum J, Castañeda M, Dipple KM, Alcohol intervention for adolescents with fetal alcohol spectrum disorders: Project Step Up, a treatment development study
Alcoholism: Clinical and Experimental Research 2016; DOI: 10.1111/acer.13111. Epub 2016 May 24
[Read Summary]

Orozco AM, et al. Characteristics of US adults aged ≥ 19 years with a usual daily folic acid intake above the tolerable upper intake level: National Health and Nutrition Examination Survey 2003-2010. Nutrients. 2016 8(4):195. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4848664/

Razzaghi H, et al. Impact of missing data for body mass index in an epidemiologic study. Matern Child Health J. 2016 Jul;20(7):1497-505. https://www.ncbi.nlm.nih.gov/pubmed/27029540

Rice CE, Zablotsky B, Avila RM, Colpe LJ, Schieve LA, Pringle B, Blumberg SJ, Journal of Pediatrics. Reported wandering behavior among children with autism spectrum disorder and/or intellectual disability July 2016.

Schieve LA, Tian LH, Rankin K, Kogan MD, Yeargin-Allsopp M, Visser S, Rosenberg D., Population impact of preterm birth and low birth weight on developmental disabilities in US children. Annals of Epidemiology. April 2016.

Seeliger, E.L., Martin, R.A., Gromoske, A.N., & Harris, A.B. (2016). WIC Participation as a Risk Factor for Loss to Follow-Up in the Wisconsin EHDI System. Journal of Early Hearing Detection and Intervention, 1(1), 57-65. http://digitalcommons.usu.edu/jehdi/vol1/iss1/8/

Van Naarden Braun K, Doernberg N, Schieve L, Christensen D, Goodman A, Yeargin-Allsopp M. Birth Prevalence of Cerebral Palsy: A Population-Based Study. Pediatrics 2016;Jan:137(1):1-9. http://www.ncbi.nlm.nih.gov/pubmed/26659459

Visser, Susanna N., et. al., Vital Signs: National and State-Specific Patterns of Attention Deficit/Hyperactivity Disorder Treatment Among Insured Children Aged 2–5 Years — United States, 2008–2014, Morbidity and Mortality Weekly Report (MMWR); May 3, 2016; 56(16) [Read article]

Vital Signs: Alcohol-Exposed Pregnancies—United States, 2011–2013
Morbidity and Mortality Weekly Report 2016;65(4):91–7. [Read Article]

Xu, X., Mann, J. R., Hardin, J. W., Gustafson, E., McDermott, S. W., & Deroche, C. B. (2016). Adherence to US Preventive Services Task Force recommendations for breast and cervical cancer screening for women who have a spinal cord injury. The Journal of Spinal Cord Medicine, 0. http://doi.org/10.1080/10790268.2016.1153293

Xu, X., Mann, J. R., McDermott, S. W., Deroche, C. B., Gustafson, E., & Hardin, J. W. (n.d.). Women with Visual Impairment and Insured by Medicaid or Medicare Are Less Likely to Receive Recommended Screening for Breast and Cervical Cancers. Ophthalmic Epidemiology, 0(0), 1–6. http://doi.org/10.1080/09286586.2016.1213302

Yeung LF, et al. Ascertaining the burden of birth defects. Am J Prev Med. 2016 May;50(5):672-3. http://www.ajpmonline.org/article/S0749-3797(16)00059-3/abstract

Yoshinaga-Itano, C. & Wiggin, M. (2016). A look into the crystal ball for children who are deaf or hard of hearing: Needs, opportunities and challenges, Seminars in Speech and Language; 37, 252–258. https://www.ncbi.nlm.nih.gov/pubmed/27701701

Zaganjor, I, Sekkarie, A, Tsang, BL, Williams, J, Razzaghi, H, Mulinare, J, Sniezek, JE¹, Cannon, MJ, Rosenthal, J. Describing the Prevalence of Neural Tube Defects Worldwide: A Systematic Literature Review. PLoS One. 2016 Apr 11;11(4):e0151586. doi: 10.1371/journal.pone. 0151586. eCollection 2016. http://www.ncbi.nlm.nih.gov/pubmed/27064786

2015 NCBDDD Notable Scientific Publications

Ailes EC, et al. Opioid prescription claims among women of reproductive age — United States, 2008–2012. MMWR Morb Mortal Wkly Rep 2015;64(2):37-41. http://www.cdc.gov/mmwr/pdf/wk/mm6402.pdf

Ailes EC, et al. Estimated number of infants detected and missed by critical congenital heart defect screening. Pediatrics 2015;135:1000-8. http://pediatrics.aappublications.org/content/135/6/1000

Anthony, T., Wiggin, M., Yoshinaga-Itano, C., (2015). Infants and toddlers with sensory disabilities (pp. 216-254). In S.A. Raver & D.C. Childress, (Eds.) Family-Centered Early Intervention: Supporting Infants and Toddlers in Natural Environments. Baltimore: Brookes Publishing Company.

Arth A, Tinker S, Moore C, Canfield M, Agopian A, Reefhuis J., Supplement use and other characteristics among pregnant women with a previous pregnancy affected by a neural tube defect – United States, 1997-2009. MMWR Morb Mortal Wkly Rep. 2015 Jan; 64(1):6-9. [Read Summary] [Read key findings]

Bandini L, et al. Obesity in children with developmental and/or physical disabilities. Disabil Health J 2015;8(3):309-16. http://www.ncbi.nlm.nih.gov/pubmed/26058685

Barger, B., Campbell, J., & Simmons, C. (2015). Personality in Autism During Middle Childhood: An analysis using the Inventory of Children’s Individual Differences. Focus on Autism and Other Developmental Disabilities. http://journals.sagepub.com/doi/abs/10.1177/1088357615583472

Baum M, et al. Characteristics and survival of patients with end stage renal disease and spina bifida in the United States renal data system. J Urol 2015;193(2):558-64. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4481865/

Birch SM, Carpenter HA, Marsh AM, McClung KA, Doll JD The knowledge of rehabilitation Fetal Alcohol Syndrome Among Children Aged 7-9 Years – Arizona, Colorado, and New York, 2010, Morbidity and Mortality Weekly Report; January 30, 2015; 64(3):54-57 CDC [Read article]

Bouldin, Erin D., et al. “Visitability surveillance, prevalence, and correlates in Florida.” Disability and health journal 8.1 (2015): 140-145. http://www.sciencedirect.com/science/article/pii/S1936657414000983

CDC, Alcohol use and binge drinking among women of childbearing age – United States, 2011–2013 Morbidity and Mortality Weekly Report; September 25, 2015; 64(37); 1042-1046
[Read Article]

Correa-de-Araujo R, et al. Persons with disabilities as an unrecognized health disparity population. Am J Public Health 2015;105(2):198-206. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4355692/

Courtney-Long EA, Carroll DD, Zhang Q, et al. Prevalence of Disability and Disability Type among Adults, United States – 2013, MMWR Morb Mortal Wkly Rep 2015; 64: 777-783. [Read Article]

Crider KS, et al. Population red blood cell folate concentrations for prevention of neural tube defects: Bayesian model. BMJ 2014 Jul;349:g4554. http://www.cdc.gov/mmwr/preview/mmwrhtml/mm6415a5.htm

Cyrus A, et al. Tools for improving clinical preventive services receipt among women with disabilities of childbearing ages and beyond. Matrn Chlid Health J 2015;19(6):1189-1201. http://www.ncbi.nlm.nih.gov/pubmed/25359095

Dickerson AS, Rahbar MH, Han I, Bakian AV, Bilder DA, Harrington RA, Pettygrove S, Durkin M, Kirby RS, Wingate MS, Tian LH, Zahorodny WM, Pearson DA, Moyé LA 3rd, Baio J., Autism spectrum disorder prevalence and proximity to industrial facilities releasing arsenic, lead or mercury.
Science of the Total Environment. July 2015.

Durkin MS, Maenner MJ, Benedict RE, Van Naarden Braun K, Christensen D, Kirby RS, Wingate M, Yeargin-Allsopp M., The role of socio-economic status and perinatal factors in racial disparities in the risk of cerebral palsy., Developmental Medicine and Child Neurology. March 2015. [Epub ahead of print]

Durkin MS, Maenner MJ, Benedict RE, Van Naarden Braun K, Christensen D, Kirby RS, Wingate M, Yeargin-Allsopp M.The role of socio-economic status and perinatal factors in racial disparities in the risk of cerebral palsy. Developmental Medicine and Child Neurology. March 2015. [Epub ahead of print]
Eisenberg et al. Development of a community health inclusion index: an evaluation tool for improving inclusion of people with disabilities in community health initiatives. BMC Public Health (2015) 15:1050 DOI 10.1186/s12889-015-2381-2. http://download.springer.com/static/pdf/768/

Forman-Hoffman VL, et al. Disability status, mortality, and leading causes of death in the United States community population. Med Care 2015;53(4):346-54. http://www.ncbi.nlm.nih.gov/pubmed/25719432

Fountain C, Zhang Y, Kissin DM, Schieve LA, Jamieson DJ, Rice C, Bearman P., Association between assisted reproductive technology conception and autism in California, 1997-2007.
American Journal of Public Health. May 2015.

Fox DJ, et al. Fetal alcohol syndrome among children aged 7-9 years – Arizona, Colorado, and New York, 2010. MMWR Morb Mortal Wkly Rep 2015;64:54-7.http://www.cdc.gov/mmwr/preview/mmwrhtml/mm6403a2.htm

Glidewell J, et al. State legislation, regulations, and hospital guidelines for newborn screening for critical congenital heart defects—United States, 2011-2014. MMWR Morb Mortal Wkly Rep 2015;64:625-30.http://www.cdc.gov/mmwr/preview/mmwrhtml/mm6423a1.htm

Han, M.K., Storkel, H.L., Hoon-Lee, J., & Yoshinaga-Itano, C. (2015). The influence of word characteristics on the vocabulary of children with cochlear implants. Deaf Stud. Deaf Educ. (2015) 20 (3): 242-251. https://www.ncbi.nlm.nih.gov/pubmed/25802320

Havercamp, Susan M., and Haleigh M. Scott. “National health surveillance of adults with disabilities, adults with intellectual and developmental disabilities, and adults with no disabilities.” Disability and health journal 8.2 (2015): 165-172. ttp://www.sciencedirect.com/science/article/pii/S1936657414001848

Jo H, Schieve LA, Rice CE, Yeargin-Allsopp M, Tian LH, Blumberg SJ, Kogan MD, Boyle CA., Age at autism spectrum disorder (ASD) diagnosis by race, ethnicity, and primary household language among children with special health care needs, United States, 2009-2010. Maternal and Child Health Journal. February 2015 [Epub ahead of print]

Jo H, Schieve LA, Sharma AJ, Hinkle SN, Li R, Lind JN.Maternal pregnancy body mass index and child psychosocial development at 6 years of age., Pediatrics. May 2015

Kable JA, Taddeo E, Strickland D, Coles CD, Community translation of the Math Interactive Learning Experience Program for children with FASD, Research in Developmental Disabilities, 2015: 10.1016/j.ridd.2014.12.031 [Read Summary]

Kissin DM, Zhang Y, Boulet SL, Fountain C, Bearman P, Schieve L, Yeargin-Allsopp M, Jamieson DJ., Association of assisted reproductive technology (ART) treatment and parental infertility diagnosis with autism in ART-conceived children. Human Reproduction. February 2015.

Krahn, Gloria L., Walker, Deborah K., and Correa-De-Araujo, Rosaly. Persons With Disabilities as an Unrecognized Health Disparity Population. American Journal of Public Health 2015 105, S2, S198-S206. http://ajph.aphapublications.org/doi/pdf/10.2105/AJPH.2014.302182

Liu T, et al. The National Spina Bifida Patient Registry: profile of a large cohort of participants from the first 10 clinics. J Pediatr 2015;166(2):444-50. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4535790/

Mann, Joshua, et al. “What are the specific disability and limitation types underlying responses to the BRFSS disability questions?.” Disability and health journal 8.1 (2015): 17-28. http://www.sciencedirect.com/science/article/pii/S1936657414000909

Muñoz, D, and Arriaga, RI. “Low-Income Parents’ Values Involving the Use of Technology for Assessing Health Information.” International Conference on Human-Computer Interaction (Interact), Los Angeles, CA, in September 2015. http://www.academia.edu/26025486/Low-Income_Parents_Values_Involving_the_Use_of_Technology_for_Accessing_Health_Information

O’Leary LA, Ortiz L, Montgomery A, Fox DJ, Cunniff C, Ruttenber M, Breen A, Pettygrove S, Klumb D, Drushel C, Frias JL, Robinson LK, Bertrand J, Ferrara K, Kelly M, Gilboa SM, Meaney FJ, Methods for surveillance of fetal alcohol syndrome: The Fetal Alcohol Syndrome Surveillance Network II (FASSNetII) – Arizona, Colorado, New York, 2009 – 2014 Birth Defects Res A Clin Mol Teratol. Mar 2015; 103(3):196-202. doi: 10.1002/bdra.23335. Epub 2015 Mar 12
FASSNetII. [Read Summary]

Ouyang L, Bolen J, Valdez R, Joseph D, Baum MA, Thibadeau J., Characteristics and survival of end stage renal disease (ESRD) patients with spina bifida in the United States Renal Data System (USRDS), J Urol. 2015 Feb; 193(2):558-64.
[Read summary]

Raspa, M., Levis, D., Doto, J., Wallace, I., Rice, C., Barger, B., Green, K., & Wolf, R. (2015). Examining parents’ experiences and information needs in the early identification of developmental delays: Qualitative research to inform a public health campaign. Developmental and Behavioral Pediatrics, 36(8), 575-585. https://www.ncbi.nlm.nih.gov/pubmed/26414090

Reefhuis J, et al. Specific SSRIs and birth defects: Bayesian analysis to interpret new data in the context of previous reports. BMJ 2015 Jul;351:h3190. http://www.bmj.com/content/351/bmj.h3190

Riehle-Colarusso T, et al. Congenital heart defects and receipt of special education services. Pediatrics 2015;136;496-504. http://pediatrics.aappublications.org/content/136/3/496

Romitti PA, et al. Prevalence of Duchenne and Becker muscular dystrophies in the United States. Pediatrics 2015;135(3):936-44. http://pediatrics.aappublications.org/content/135/3/513

Rubenstein E, Wiggins LD, Lee LC., A review of the differences in developmental, psychiatric, and medical endophenotypes between males and females with autism spectrum disorder.
Journal of Developmental and Physical Disabilities. February 2015.

Sawin, KJ, et al. The National Spina Bifida Patient Registry: Profile of a Large Cohort of Participants from the First 10 Clinics. Pediatrics 2015;166(2):444-50. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4535790/

Sawin K, Liu T, Ward E, Thibadeau J, Schechter M, Soe M, Walker W., The national spina bifida patient registry: profile of a large cohort of participants from the first 10 clinics, J Pediatr. 2015 Feb; 166(2):444-50.e1. [Read summary]

Schechter MS, Liu T, Soe M, Swanson M, Ward E, Thibadeau J.,Sociodemographic attributes and spina bifida outcomes, Pediatr. 2015;135(4):e957-e964. [Read summary] [Read key findings]

Sinclair LB¹, Tanenhaus RH, Courtney-Long E, Eaton DK. Disability Within US Public Health School and Program Curricula. J Public Health Manag Pract. 2015 Jul-Aug;21(4):400-5. doi: 10.1097/PHH.0000000000000114. http://www.ncbi.nlm.nih.gov/pubmed/26010692

Schieve LA, Clayton HB, Durkin MS, Wingate MS, Drews-Botsch C., Comparison of perinatal risk factors associated with autism spectrum disorder (ASD), intellectual disability (ID), and co-occurring ASD and ID. Journal of Autism and Developmental Disorders. March 2015 [Epub ahead of print].

Schieve LA, Fountain C, Boulet SL, Yeargin-Allsopp M, Kissin DM, Jamieson DJ, Rice C, Bearman P., Does autism diagnosis age or symptom severity differ among children according to whether assisted reproductive technology was used to achieve pregnancy? Journal of Autism and Developmental Disorders. May 2015 [Epub ahead of print].

Sinclair LB, Taft KE, Sloan ML, Stevens AC, Krahn GL. Tools for improving clinical preventive services receipt among women with disabilities of childbearing ages and beyond. Matern Child Health J. 2015 Jun;19(6):1189-201. doi: 10.1007/s10995-014-1627-4.

Tan CH, et al. Alcohol use and binge drinking among women of childbearing age – United States, 2011–2013. MMWR Morb Mortal Wkly Rep 2015;65:1042-6. http://www.cdc.gov/mmwr/preview/mmwrhtml/mm6437a3.htm

Van Naarden Braun K, Christensen D, Doernberg N, Schieve L, Rice C, Wiggins L, Schendel D, Yeargin-Allsopp M, Trends in the prevalence of autism spectrum disorder, cerebral palsy, hearing loss, intellectual disability, and vision impairment, metropolitan atlanta, 1991-2010. PLoS One. April 2015.

Visser SN, Bitsko RH, Danielson ML, Ghandour RM, Blumberg SJ, Schieve LA, Holbrook JR, Wolraich ML. Cuffe SP.Treatment of attention deficit/hyperactivity disorder among children with special health care needs., Journal of Pediatrics. June 2015.

Williams, T. R., Alam, S., Gaffney, M., Progress in Identifying Infants with Hearing Loss
MMWR; 2015; 64(13); 351-356. [Read article]

Williams J, Mai CT, Mulinare J, Isenburg J, Flood TJ, Ethen M, Frohnert B, Kirby RS., Updated estimates of neural tube defects prevented by mandatory folic Acid fortification – United States, 1995-2011. MMWR Morb Mortal Wkly Rep. 2015 Jan; 64(1):1-5. [Read Summary] [Read key findings]

Wiggins LD, Levy SE, Daniels J, Schieve L, Croen LA, DiGuiseppi C, Blaskey L, Giarelli E, Lee LC, Pinto-Martin J, Reynolds A, Rice C, Rosenberg CR, Thompson P, Yeargin-Allsopp M, Young L, Schendel D., Autism spectrum disorder symptoms among children enrolled in the Study to Explore Early Development (SEED). Journal of Autism and Developmental Disorders. June 2015 [Epub ahead of print]

2014 NCBDDD Notable Scientific Publications

Alam, S., Gaffney, M. & Eichwald, J., Improved Newborn Hearing Screening Follow-up Results in More Infants Identified, 2014; 20(2): 220-223. [Read article]

Alford, R.L., Arnos, K.S., Fox, M., Lin, J.W., Palmer, C.G., Pandya, A., Rehm, H.L., Robin, N.H., Scott, D.A., & Yoshinaga-Itano, C. (2014). American College of Medical Genetics and Genomics guideline for the clinical evaluation and etiologic diagnosis of hearing loss. Genetics in Medicine, 16, 347-355. https://www.ncbi.nlm.nih.gov/pubmed/24651602

Anderson WL, et al. Obesity and people with disabilities: The implications for health care expenditures. Obesity. 21: E798–E804. doi: 10.1002/oby.20531. http://onlinelibrary.wiley.com/doi/10.1002/oby.20531/full

Bakian AV, Bilder DA, Carbone PS, Hunt TD, Petersen B, Rice CE., Brief Report: Independent validation of autism spectrum disorder case status in the Utah Autism and Developmental Disabilities Monitoring (ADDM) Network site. Journal of Autism and Developmental Disorders. July 2014. [Epub ahead of print]

Barger, B., Campbell, J., & Simmons, C. (2014). Measuring Five Factor Personality Traits in Autism During Early Childhood. Journal of Developmental and Physical Disabilities, 26(6), 775-792. http://journals.sagepub.com/doi/abs/10.1177/1088357615583472

Bayliss EA, et al. Understanding the context of health for persons with multiple chronic conditions: moving from what is the matter to what matters. American Family Medicine. 2014;May-Jun;12(3):260-269. http://www.annfammed.org/content/12/3/260.short

Cannell, Michael B., et al. “US population estimates and correlates of sexual abuse of community-dwelling older adults.” Journal of elder abuse & neglect 26.4 (2014): 398-413. http://www.tandfonline.com/doi/abs/10.1080/08946566.2013.879845#.VdysgIXMKpA

Cannon MJ, Guo J, Denny CH, Green PP, Miracle H, Sniezek JE, Floyd RL, Prevalence and characteristics of women at risk for an alcohol-exposed pregnancy (AEP) in the United States: Estimates from the National Survey of Family Growth, Maternal and Child Health Journal 2014; DOI: 10.1007/s10995-014-1563-3, [Read Summary]

Carr, J.C., Xu, Dongxin, Yoshinaga-Itano, C. (2014). Language ENvironment Analysis (LENA) Language and Autism Screen (LLAS) and the Child Development Inventory Social Subscale as a possible autism screen for children who are deaf or hard of hearing. Seminars in Speech and Language, 35. https://www.ncbi.nlm.nih.gov/pubmed/25321851

Carroll D, Courtney-Long E, Stevens A, Sloan M, Lullo C, Visser S, Fox M, Armour B, Campbell V, Brown D, and Dorn, J. Vital Signs: Disability and Physical Activity – United States, 2009-2012.
MMWR; May 2014; 63. [Read Article]

CDC. Prevalence of autism spectrum disorder among children aged 8 years-Autism and Developmental Disabilities Monitoring Network, 11 sites, United States, 2010. MMWR Surveill Summ. 2014 Mar 28;63(2);1 21. http://www.cdc.gov/mmwr/preview/mmwrhtml/ss6302a1.htm?s_c

Centers for Disease Control and Prevention, Prevalence of autism spectrum disorder among children aged 8 years–Autism and Developmental Disabilities Monitoring Network, 11 sites, United States, 2010. MMWR Surveill Summ. 2014 Mar 28;63(2); 1-21.

Cheal NE, McKnight-Eily L, Weber MK Alcohol screening and brief intervention: A clinical solution to a vital public health issue, American Nurse Today 2014;9(9):34-35

Courtney-Long E, et al. Disparities in current cigarette smoking prevalence by type of disability, 2009-2011. Public Health Rep. 2014 May;129(3):252-60. http://europepmc.org/articles/pmc3982553

Chrischilles, Elizabeth A., et al. “Medication Therapy Management and Complex Patients With Disability A Randomized Controlled Trial.” Annals of Pharmacotherapy 48.2 (2014): 158-167. http://aop.sagepub.com/content/48/2/158.short

Christensen DL, et al. Socioeconomic status, child enrichment factors, and cognitive performance among preschool-age children: results from the Follow-Up of Growth and Development Experiences Study. Res Dev Disabil. 2014 Jul;35(7):1789-801. http://www.sciencedirect.com/science/article/pii/S0891422214000614

Deroche, BS, McDermott, SW, Mann, JR, Hardin, JW. (2017). Colorectal cancer screening adherence in selected disabilities over 10 years. Am J Prev Med. Feb 14; pi:S0749-3797(17)30011-9. https://www.ncbi.nlm.nih.gov/pubmed/28214250

Evans SF, Tenkku LE, Kennedy T, Zoorob R, Rudeen PK, Fetal alcohol spectrum disorders: Survey of healthcare providers after continuing education, Journal of Intellectual Disability – Diagnosis and Treatment 2014;2(2):133-143

Gaffney, M, Eichwald, J, Gaffney, C, & Alam, S, Early Hearing Detection and Intervention Among Infants – Hearing Screening and Follow-up-Survey, United States, 2005-2006 and 2009-2010; Sept. 12, 2014/63(02): 20-26. [Read article]

Holbrook, Joseph R., et. al., Persistence of Parent-Reported ADHD Symptoms From Childhood Through Adolescence in a Community Sample. Journal of Attention Disorders published online 3 July 2014 DOI: 10.1177/1087054714539997. [Read abstract] [Read key findings]

Horner‐Johnson, Willi, et al. “Disparities in Health Care Access and Receipt of Preventive Services by Disability Type: Analysis of the Medical Expenditure Panel Survey.” Health services research 49.6 (2014): 1980-1999. http://onlinelibrary.wiley.com/doi/10.1111/1475-6773.12195/abstract?userIsAuthenticated=false&deniedAccessCustomisedMessage=

Johnson NL, et al. Genomics and Autism Spectrum Disorder. J Nurs Scholarsh. 2013 Mar;45(1):69-78. doi: 10.1111/j.1547-5069.2012.01483.x. Epub 2013 Jan 31. http://onlinelibrary.wiley.com/enhanced/doi/10.1111/j.1547-5069.2012.01483.x/

Kellogg, E.C., Thrasher, A., & Yoshinaga-Itano, C. (2014). Early predictors of autism in young children who are deaf or hard of hearing: Three longitudinal case studies. Seminars in Speech and Language, 35, 276-287. https://www.ncbi.nlm.nih.gov/pubmed/25321852

Kesmodel U, Kjaersgaard M, Denny C, Bertrand J, Skogerbø Å, Eriksen HL, Bay B, Underbjerg M, Mortensen E., The association of pre-pregnancy alcohol drinking with child neuropsychological functioning, BJOG: An International Journal of Obstetrics and Gynaecology 2014; DOI 10.1111/1471-0528.13172, [Read Summary]

Kim S, et al., Corticosteroid Treatments in Males with Duchenne Muscular Dystrophy: Treatment Duration and Time to Loss of Ambulation, Journal of Child Neurology 2014 Nov 20 [Epub ahead of print]

Kim S, et al. Metabolic risk factors in U.S. youth with low relative muscle mass. Obesity Research & Clinical Practice. Published online: June 17, 2014. http://www.sciencedirect.com/science/article/pii/S1871403X14004980

Krahn G, et al. Health Disparities of Adults with Intellectual Disabilities: What Do We Know? What Do We Do? Journal of Applied Research in Intellectual Disabilities. 2014;Sep; 27(5):431-446. http://onlinelibrary.wiley.com/doi/10.1111/jar.12067/abstract

Krahn G, Reyes M, Fox M. Chronic conditions and disability: Toward a conceptual model for national policy and practice considerations. Disabil Health J. 2014;7(1):13–18. [Read summary]

Lind JN, Li R, Perrine CG, Schieve LA., Breastfeeding and later psychosocial development of children at 6 years of age., Pediatrics. September 2014.

Maenner MJ, Rice CE, Arneson CL, Cunniff C, Schieve LA, Carpenter LA, Van Naarden Braun, Kirby RS, Bakian AV, Durkin MS., Potential impact of DSM-5 criteria on autism spectrum disorder prevalence estimates. JAMA Psychiatry. 2014 Mar;71(3):292-300.

Miller JE, et al. Maternal infections during pregnancy and cerebral palsy: a population-based cohort study. Paediatr Perinat Epidemiol. 2013 Nov;27(6):542-52.
http://onlinelibrary.wiley.com/doi/10.1111/ppe.12082/abstract?userIsAuthenticated=false&deniedAccessCustomisedMessage=

Moeschler JB, Shevell M, Comprehensive Evaluation of the Child With Intellectual Disability or Global Developmental Delays. Committee on Genetics Pediatrics; 2014 Aug 25. [Read Article]

Olney RS, Doernberg NS, Yeargin-Allsopp M., Exclusion of progressive brain disorders of childhood for a cerebral palsy monitoring system: A public health perspective., Journal of Registry Management. Winter 2014.

Ouyang L, Grosse SD, Riley C, Bolen B, Bishop E, Raspa M, Bailey DB Jr., A comparison of family financial and employment impacts of fragile X syndrome, autism spectrum disorders, and intellectual disability., Research in Developmental Disabilities; July 2014; 2014 Jul;35(7):1518-27. [Read Article]

Phillips KL, Schieve LA, Visser S, Boulet S, Sharma AJ, Kogan MD, Boyle CA, Yeargin-Allsopp M., Prevalence and impact of unhealthy weight in a national sample of US adolescents with autism and other learning and behavioral disabilities., Matern Child Health J. 2014 Oct;18(8):1964-75.

Raimondo, B., & Yoshinaga-Itano, C. (2014). Legislation, policies and role of research in shaping early intervention. In M. Sass-Lehrer (Ed.), Infants, Toddlers and their Families: An Interdisciplinary Perspective, Oxford Press.

Rice CE, Van Naarden Braun, K, Kogan MD, Smith C, Kavanagh L, Stickland B, Blumberg SJ., Screening for developmental delays among young children—National Survey of Children’s Health, United States, 2007. MMWR Surveillance Summaries. September 2014.

Rubenstein E, Wiggins LD, Lee LC., A review of the differences in developmental, psychiatric, and medical endophenotypes between males and females with autism spectrum disorder.
J Dev Phys Disabilities. 2014 Aug [epub ahead of print].

Schieve LA, Tian LH, Baio J, Rankin K, Rosenberg D, Wiggins L, Maenner MJ, Yeargin-Allsopp M, Durkin M, Rice C, King L, Kirby RS, Wingate MS, Devine O., Population attributable fractions for three perinatal risk factors for autism spectrum disorders, 2002 and 2008 Autism and Developmental Disabilities Monitoring (ADDM) Network. Ann Epidemiol. 2014 Apr;24(4):260-6.

Senturias, Y, Fetal Alcohol Spectrum Disorders: An Overview for Pediatric and Adolescent Care Providers, Current Problems in Pediatric and Adolescent Health Care 2014; 44:74-81,
[Read Summary]

Senturias, Y, Asamoah, A Fetal Alcohol Spectrum Disorders: Guidance for Recognition, Diagnosis, Differential Diagnosis and Referral, Current Problems in Pediatric and Adolescent Health Care 2014; 44:88-95, [Read Summary]

Senturias, Y, Baldonado, M, Fetal Spectrum Disorders: An Overview of Ethical and Legal Issues for Healthcare Providers, Current Problems in Pediatric and Adolescent Health Care 2014; 44:102-104, [Read Summary]

Senturias, Y, Burns, B Managing Children and Adolescents With Fetal Alcohol Spectrum Disorders in the Medical Home, Current Problems in Pediatric and Adolescent Health Care 2014; 44:96-101, [Read Summary]

Stevens A, Courtney-Long E, Gillespie C, Armour BS, Hypertension Among US Adults by Disability Status and Type, National Health and Nutrition Examination Survey, 2001–2010.. Prev Chronic Dis 2014;11:140162.[Read Article]

Szarkowski, A., Mood, D., Shield, A., Wiley, S., & Yoshinaga-Itano, C. (2014). A summary of current understanding regarding children with Autism Spectrum Disorder who are deaf or hard of hearing. Seminars in Speech and Language, 35, 241-259. https://www.ncbi.nlm.nih.gov/pubmed/25321849

Thompson, N., & Yoshinaga-Itano, C. (2014). Enhancing the development of infants and toddlers with dual diagnosis of autism spectrum disorder and deafness. Seminars in Speech and Language, 321-330. https://www.ncbi.nlm.nih.gov/pubmed/25321856

Visser SN, et al. Trends in the Parent-Report of Health Care Provider-Diagnosed and Medicated Attention Deficit/Hyperactivity Disorder: United States, 2003–2011. Journal of the American Academy of Child and Adolescent Psychiatry Volume 53, Issue 1, January 2014, Pages 34–46.e2. [Read article][Read key findings] [Listen to a podcast by the journal discussing the study]

Wheeler A, Raspa M, Bann C, Bishop E, Hessl D, Sacco P, Bailey DB Jr., Anxiety, attention problems, hyperactivity, and the Aberrant Behavior Checklist in fragile X syndrome.
American Journal Of Medical Genetics Part A; January 2014;164A(1): 141-55. [Read Summary]

Wiggins LD, Reynolds A, Rice CE, Moody EJ, Bernal P, Blaskey L, Rosenberg SA, Lee LC, Levy SE., Using standardized diagnostic instruments to classify children with autism in the Study to Explore Early Development. Journal of Autism and Developmental Disorders. October 2014 [Epub ahead of print].

Yoshinaga-Itano, C., & Uhler, K. (2014). Early intervention, education, and therapy for children who are deaf or hard of hearing. In J. Katz (Ed.), Clinical Handbook of Audiology, 7th Edition. http://doi.org/10.1542/peds.106.3.e43

Zhu Y, et al., Complimentary and Alternative Medicine for Duchenne and Becker Muscular Dystrophies: Characteristics of Users and Caregivers, Pediatric Neurology 2014 Jul;51(1):71-7.

Zoorob, R, Snell, H, Kihlberg, C, Senturias, Y, Screening and Brief Intervention for Risky Alcohol Use, Current Problems in Pediatric and Adolescent Health Care 2014; 44:82-87, [Read Summary]

2013 NCBDDD Notable Scientific Publications

Abrams L, Cronister A, Brown WT, Tassone F, Sherman SL, Finucane B, McConkie-Rosell A, Hagerman R, Kaufmann WE, Picker J, Coffey S, Skinner D, Johnson V, Miller R, Berry-Kravis E., Newborn, Carrier, and Early Childhood Screening Recommendations for Fragile X, Pediatrics; 2012 Dec;130(6):1126-35. [Read Article]

Alriksson-Schmidt AI, Thibadeau JK, Swanson ME, Marcus D, Carris KL, Siffel C, Ward E., The natural history of spina bifida in children pilot project: research protocol. JMIR Res Protoc. 2013 Jan; 2(1):e2. [Read summary]

Anderson C, et al. Occurrence and family impact of elopement in children with autism spectrum disorders. Pediatrics. 2012 Nov;130(5):870-877.

Armour BS, Courtney-Long EA, Campbell VA and Wethington HR. Disability Prevalence Among Healthy Weight, Overweight, and Obese Adults. Obesity (Silver Spring). 2013 Apr;21(4):852-5. doi: 10.1002/oby.20312. [Read summary]

Centers for Disease Control and Prevention. CDC Grand Rounds: Public Health Practices to Include Persons with Disabilities. MMWR 2013;62:697-701. [Read article]

Disability, health, and multiple chronic conditions among people eligible for both Medicare and Medicaid, 2005-2010. Preventing Chronic Disease. 2013 Sep 19;10:E157. doi: 10.5888/pcd10.130064. Fox MH, Reichard A. [Read summary]

Elek E, Harris SL, Squire CM, Margolis M, Weber MK, Dang EP, Mitchell E, Women’s knowledge, views, and experiences regarding alcohol use and pregnancy: Opportunities to improve health messages, American Journal of Health Education; 2013; 44(4):177-190
[Read Summary]

Eriksen H-LF, Kesmodel US, Underbjerg M, Kilburn TR, Bertrand J, Mortensen EL, Predictors of intelligence at the age of 5: Family, pregnancy and birth characteristics, postnatal influences, and postnatal growth, PLoS ONE 2013;8(11): e79200, doi:10.1371/journal.pone.0079200 [Read Article]

Flak AL, Su S, Bertrand J, Denny CH, Kesmodel US, Cogswell ME
The association of mild, moderate, and binge prenatal alcohol exposure and child neuropsychological outcomes: A meta-analysis, Alcoholism: Clinical and Experimental Research 2013; DOI: 10.1111/acer.12214:1-13. [Read Summary]

Fox MH, Witten MH, Lullo C. Reducing Obesity among People with Disability.
Journal of Disability Policy Studies July 12, 2013 1044207313494236 [Read summary]

Armour BS, et al. Disability prevalence among healthy weight, overweight, and obese adults. Obesity (Silver Spring). 2013 Apr;21(4):852-855.

Atladóttir HÓ, et al. Autism after infection, febrile episodes, and antibiotic use during pregnancy: an exploratory study. Pediatrics. 2012 Dec;130(6):e1447-e1454.

Barnes, Timothy L., et al. “Physical activity in a large sample of adults with intellectual disabilities.” Journal of physical activity & health 10.7 (2013): 1048-1056. http://journals.humankinetics.com/AcuCustom/Sitename/Documents/DocumentItem/14_Barnes_JPAH_20110024_1048_1056-ej.pdf

Bartels, Stephen J., et al. “Clinically significant improved fitness and weight loss among overweight persons with serious mental illness.” Psychiatric Services (2013). http://ps.psychiatryonline.org/doi/10.1176/appi.ps.003622012

Benjamin G, et al. CDC grand rounds: public health practices to include persons with disabilities. MMWR Morbidity and Mortality Weekly Report. 2013;62:697-701.

Berry RJ, Crider KS, Yeargin-Allsopp M, Periconceptional folic acid and risk of autism spectrum disorders. Journal of the American Medical Association. February 2013.

Blumberg SJ, Bramlett MD, Kogan MD, Schieve LA, Jones JR, Lu MC, Changes in prevalence of parent-reported autism spectrum disorder in school-aged U.S. children: 2007-2012. National Health Statistics Reports. March 2013.

Christensen J, Grønborg TK, Sørensen MJ, Schendel D, Parner ET, Pedersen LH, Vestergaard M, Prenatal valproate exposure and risk of autism spectrum disorders and childhood autism: a population-based study. Journal of the American Medical Association. April 2013.

Christensen D, Van Naarden Braun K, Doernberg NS, Maenner MJ, Arneson CL, Durkin MS, Benedict RE, Kirby RS, Wingate MS, Fitzgerald R, Yeargin-Allsopp M., Prevalence of cerebral palsy, co-occurring autism spectrum disorders, and motor functioning – Autism and Developmental Disabilities Monitoring Network, USA, 2008. Developmental Medicine and Child Neurology. October 2013.

Christensen J, Grønborg TK, Sørensen MJ, Schendel D, Parner ET, Pedersen LH, Vestergaard M., Prenatal valproate exposure and risk of autism spectrum disorders and childhood autism: a population-based study. Journal of the American Medical Association. April 2013.

Ehde, Dawn M., et al. “Developing, testing, and sustaining rehabilitation interventions via participatory action research.” Archives of physical medicine and rehabilitation 94.1 (2013): S30-S42. http://www.archives-pmr.org/article/S0003-9993%2812%2901083-0/abstract?cc=y=

Fox MH, et al. Disability, health, and multiple chronic conditions among people eligible for both Medicare and Medicaid, 2005-2010. Preventing Chronic Disease. 2013 Sep 19;10:E157.

Fox MH, et al. Reducing obesity among people with disability. Journal of Disability Policy Studies. 2013 July 12;1044207313494236.

Frequency and pattern of documents diagnostic features and the age of autism identification. Journal of the American Academy of Child and Adolescent Psychiatry. April 2013.

Grønborg TK, Schendel DE, Parner ET, Recurrence of autism spectrum disorders in full- and half-siblings and trends over time: a population-based cohort study. JAMA Pediatrics. October 2013.

Hanson JD, Miller AL, Winberg A, Elliott A, Prevention of alcohol-exposed pregnancies among nonpregnant American Indian women, American Journal of Health Promotion 2013;27(3)S66-S73
[Read Summary]

Hutton HE, Chander G, Green PP, Hutsell CA, Weingarten K, Peterson KL, A novel integration effort to reduce the risk for alcohol-exposed pregnancy among women attending urban STD clinics, Public Health Reports; 2014; 129(1):56-62. [Read Article]

Hinkle SN, Sharma AJ, Kim SY, Schieve LA., Maternal prepregnancy weight status and associations with children’s development and disabilities at kindergarten. International Journal of Obesity. October 2013.

Houlihan, B. V., et al. “A pilot study of a telehealth intervention for persons with spinal cord dysfunction.” Spinal cord 51.9 (2013): 715-720. http://www.nature.com/sc/journal/v51/n9/abs/sc201345a.html

Kancherla V, et al. Childhood vision impairment, hearing loss and co-occurring autism spectrum disorder. Disability and Health Journal. 2013 Oct;6(4):333-342.

Kesmodel US, Bay B, Wimberley T, Eriksen H-LF, Mortensen EL, Does binge drinking during early pregnancy increase the risk of psychomotor deficits? Alcoholism: Clinical and Experimental Research; 2013; doi: 10.1111/acer.12072, [Read Summary]

Krahn G, et al. Health disparities of adults with intellectual disabilities: What do we know? What do we do? Journal of Applied Research in Intellectual Disabilities. 2013 Jul 31;doi: 10.1111/jar.12067.

Krahn G, et al. Toward a conceptual model for national policy and practice considerations. Disability and Health Journal. 2014 Jan;7(1):13-18. Epub Aug 5, 2013.

Krahn G, Fox MH. Health Disparities of Adults with Intellectual Disabilities: What Do We Know? What Do We Do? Journal of Applied Research in Intellectual Disabilities. 2013 Jul 31. doi: 10.1111/jar.12067. [Read summary]

Lauritsen MB, Astrup A, Pedersen CB, Obel C, Schendel DE, Schieve L, Yeargin-Allsopp M, Parner ET., Urbanicity and autism spectrum disorders. Journal of Autism and Developmental Disorders. June 2013.

Maenner MJ, Schieve LA, Rice CE, Cunniff C, Giarelli E, Kirby RS, Lee LC, Nicholas JS, Wingate MS, Durkin MS., Kancherla V, Van Naarden Braun K, Yeargin-Allsopp M, Dental care among young adults with intellectual disability. Research in Developmental Disabilities. May 2013.

Martin GE, Ausderau KK, Raspa M, Bishop E, Mallya U, Bailey Jr DB. Therapy Service Use Among Individuals with Fragile X Syndrome: Findings From a US Parent Survey, Journal of Intellectual Disability Research; 2013 Sep;57(9):837-49 [Read Summary]

Maenner MJ, et al. Frequency and pattern of documented diagnostic features and the age of autism identification. Journal of the American Academy of Child and Adolescent Psychiatry. 2013 Apr;52(4):401-413.

Miller JE, Pedersen LH, Streja E, Bech BH, Yeargin-Allsopp M, Van Naarden Braun K, Schendel DE, Christensen D, Uldall P, Olsen J., Maternal infections during pregnancy and cerebral palsy: A population-based cohort study. Paediatric and Perinatal Epidemiology. November 2013.

Miller JS, Bilder D, Farley M, Coon H, Pinborough-Zimmerman J, Jenson W, Rice CE, Fombonne E, Pingree CB, Ritvo E, Ritvo RA, McMahon WM., Autism Spectrum Disorder Reclassified: A Second Look at the 1980s Utah/UCLA Autism Epidemiologic Study. Journal of Autism and Developmental Disorders. January 2013.

Nabukera SK, et al., Reproductive Patterns Among Mothers of Males Diagnosed with Duchenne or Becker Muscular Dystrophy, American Journal of Medical Genetics; Part A. 2013 Jan;161A(1):70-5.

Peacock G, et al. (2013). “Learn the Signs. Act Early.” The public health approach to the early identification of children at risk for autism spectrum disorder and other developmental disabilities. In Doehring P, Becker-Cottrill B, (editors). Autism Services Across America: Road Maps for Improving State and National Education, Research, and Training Programs. pp 231-247. Baltimore, MD: PH Brooks Publishing Co.

Peer N, Morojele N, London L Factors associated with contraceptive use in a rural area in Western Cape Province, South African Medical Journal; 2013; 103(6):406-412,
[Read Summary]

Perou R, Bitsko RH, Blumberg SJ, Pastor P, Ghandour RM, Gfroerer JC, Hedden SL, Crosby AE, Visser SN, Schieve LA, Parks SE, Hall JE, Brody D, Simile CM, Thompson WW, Baio J, Avenevoli S, Kogan MD, Huang LN., Mental health surveillance among children – United States, 2005-2011. Morbidity and Mortality Weekly Report, Surveillance Summaries. May 2013.

Pettygrove S, Pinborough-Zimmerman J, John Meaney F, Van Naarden Braun K, Nicholas J, Miller L, Miller J, Rice C, Predictors of ascertainment of autism spectrum disorders across nine US communities. Journal of Autism and Developmental Disorders. Epub ahead of print.

Pettygrove S, Lu Z, Andrews JG, et al., Sibling concordance for clinical features of Duchenne and Becker muscular dystrophies, Muscle & Nerve; 2013 Sept. 13 (Epub ahead of print)

Quattlebaum JL, O’Connor MJ, Higher functioning children with prenatal alcohol exposure: Is there a specific neurocognitive profile? Child Neuropsychology: A Journal on Normal and Abnormal Development in Childhood and Adolescence; 2013; 19(6):561-578 [Read Summary]

Reichard A, Fox MH. Using Population-Based Data to Examine Preventive Services by Disability Type among Dually Eligible (Medicare/Medicaid) Adults. The Disability and Health Journal. April, 2013; 6(2); 75-86. [Read summary]

Rice CE, Rosanoff M, Dawson G, Durkin MS, PhD, Croen LA, PhD, Singer A, Yeargin-Allsopp M,Evaluating changes in the prevalence of autism spectrum disorders. Public Health Reviews. March 2013.

Robinson LR, Bitsko RH, Schieve LA, Visser SN, Tourette syndrome, parenting aggravation, and the contribution of co-occurring conditions among a nationally representative sample. Disability and Health Journal. January 2013.

Reichard A, et al. Using population-based data to examine preventive services by disability type among dually eligible (Medicare/Medicaid) adults. Disability and Health Journal. 2013 Apr; 6(2);75-86.

Rice CE, et al. “ Evaluating c hanges in the preval ence of autism spec trum d isord ers.” Tulchinksky, et al (editors). Public Health Reviews: Mental Health as a Public Health Issue. 2013;34(2). pp 634-655. France: EHESP Presses.

Rice CE, Rosanoff M, Dawson G, Durkin MS, PhD, Croen LA, PhD, Singer A, Yeargin-Allsopp, Evaluating changes in the prevalence of autism spectrum disorders., Public Health Reviews. March 2013.

Rimmer, James H., et al. “Telehealth weight management intervention for adults with physical disabilities: a randomized controlled trial.” American Journal of Physical Medicine & Rehabilitation 92.12 (2013): 1084-1094. http://journals.lww.com/ajpmr/Abstract/2013/12000/Telehealth_Weight_Management_Intervention_for.6.aspx

Robertson, Jill, et al. “Older adults’ views about “Managing Your Medications” booklet.” Journal of Applied Gerontology 32.3 (2013): 370-382. http://jag.sagepub.com/content/32/3/370.short

Schendel DE, et al. The Study to Explore Early Development (SEED): A multisite epidemiologic study of autism by the Centers for Autism and Developmental Disabilities Research and Epidemiology (CADDRE) Network. Journal of Autism and Developmental Disorders. 2012 Oct; 42(10):2121-2140.

Shiyanbola, Olayinka O., Karen B. Farris, and Elizabeth Chrischilles. “Concern beliefs in medications: Changes over time and medication use factors related to a change in beliefs.” Research in Social and Administrative Pharmacy 9.4 (2013): 446-457. http://www.rsap.org/article/S1551-7411%2812%2900106-4/abstract

Sinclair LB, Fox MH, Betts DR. A Tool for Enhancing Strategic Planning: A Modeled Use of the International Classification of Functioning, Disability and Health. Int J Health Plann Mgmt. 2013 Apr-Jun;28(2):172-80. doi: 10.1002/hpm.2125. [Read summary] [PDF]

Skogerbø Å, Kesmodel US, Denny CH, Kjaersgaard MIS, Wimberley T, Landrø NI, Mortensen EL,
The effects of low to moderate alcohol consumption and binge drinking in early pregnancy on behavior in 5-year-old children: a prospective cohort study on 1628 children
BJOG: An International Journal of Obstetrics and Gynaecology; 2013; doi: 10.1111/1471-0528.12208, [Read Summary]

Streja E, Miller JE, Bech BH, Greene N, Pedersen LH, Yeargin-Allsopp M, Van Naarden Braun K, Schendel DE, Christensen D, Uldall P, Olsen J., Congenital cerebral palsy and prenatal exposure to self-reported maternal infections, fever, or smoking. American Journal of Obstetric and Gynecology. October 2013.

Tassone F., Newborn Screening for Fragile X Syndrome, JAMA Neurology; 2013 Jan 6.
[Read Article]

Thibadeau JK, Ward EA, Soe MM, Liu T, Swanson M, Sawin KJ, Freeman KA, Castillo H, Rauen K, Schechter MS., Testing the feasibility of a national spina bifida patient registry, Birth Defects Res A Clin Mol Teratol. 2013 Jan; 97(1)36-41. [Read summary]

Van Naarden Braun K, Maenner MJ, Christensen D, Doernberg NS, Durkin MS, Kirby RS, Yeargin-Allsopp M., The role of migration and choice of denominator on the prevalence of cerebral palsy. Developmental Medicine and Child Neurology. June 2013.

Visser, Susanna N., et. al., Convergent validity of parent-reported attention-deficit/hyperactivity disorder diagnosis: A cross-study comparison. JAMA Pediatrics 2013; 1-2. doi:10.1001/jamapediatrics.2013.2364 [Read article][Read key findings]

Visser, Susanna N., et. al., State-Based and Demographic Variation in Parent-Reported Medication Rates for Attention-Deficit/Hyperactivity Disorder, 2007–2008. Preventing Chronic Disease, 2013;10:20073. DOI: http://dx.doi.org/10.5888/pcd9.120073
[Read article] [Read key findings]

Visser S, Danielson M, Bitsko R, et al. Trends in the Parent-Report of Health Care Provider- Diagnosis and Medication Treatment for ADHD disorder: United States, 2003–2011. J Am Acad Child Adolesc Psychiatry. 2013 [published online November 22] doi: 10.1016/j.jaac.2013.09.001.

Wilton G, Moberg DP, Van Stelle KR, Dold LL, Obmascher K, Goodrich J, A randomized trial comparing telephone versus in-person brief intervention to reduce the risk of an alcohol-exposed pregnancy, Journal of Substance Abuse Treatment 2013;45(5):389-394; DOI: 10.1016/j.jsat.2013.06.006, [Read Summary]

Zheng, Hao W., et al. “Doubly robust testing and estimation of model‐adjusted effect‐measure modification with complex survey data.” Statistics in medicine 32.4 (2013): 673-684. http://onlinelibrary.wiley.com/doi/10.1002/sim.5532/abstract?userIsAuthenticated=false&deniedAccessCustomisedMessage=

Zhu JL, Hasle H, Correa A, Schendel D, Friedman JM, Olsen J, Rasmussen SA, Hospitalizations among persons with Down syndrome: a national cohort study. American Journal of Medical Genetics. April 2013.

2012 NCBDDD Notable Scientific Publications

Anderson C, Law JK, Daniels A, Rice C, Mandell DS, Hagopian L, Law PA., Occurrence and family impact of elopement in children with autism spectrum disorders. Pediatrics. November 2012.

Anderson C, Law JK, Daniels A, Rice C, Mandell DS, Hagopian L, Law PA, Occurrence and family impact of elopement in children with autism spectrum disorders. Pediatrics. November 2012.

Armour BS, Courtney-Long E, Campbell VA, Wethington HR. Estimating disability prevalence among adults by body mass index: 2003-2009 National Health Interview Survey. Prev Chronic Dis. 2012; 9:120-136. [Read summary]

Atladóttir HO, Schendel DE, Lauritsen MB, Henriksen TB, Parner ET., Patterns of contact with hospital for children with an autism spectrum disorder: a danish register-based study. Journal of Autism Developmental Disorders. August 2012.

Atladóttir HÓ, Henriksen TB, Schendel DE, Parner ET., Autism after infection, febrile episodes, and antibiotic use during pregnancy: an exploratory study. Pediatrics. December 2012.

Atladóttir HÓ, Henriksen TB, Schendel DE, Parner ET., Using maternally reported data to investigate the association between early childhood infection and autism spectrum disorder: the importance of data source. Paediatric and Perinatal Epidemiology. July 2012.

Atladóttir HÓ, Henriksen TB, Schendel DE, Parner ET, Autism after infection, febrile episodes, and antibiotic use during pregnancy: an exploratory study. Pediatrics. December 2012.

Atladóttir HO, Schendel DE, Lauritsen MB, Henriksen TB, Parner ET, Patterns of contact with hospital for children with an autism spectrum disorder: a danish register-based study.
Journal of Autism Developmental Disorders. 2012 Aug;42(8):1717-28.

Bailey DB Jr, Bishop E, Raspa M, Skinner D., Caregiver options about fragile X population screening. Genetics in Medicine; January 2012;14(1):115-21 [Read Article]

Bailey DB Jr, Raspa M, Bishop E, Olmsted M, Mallya UG, Berry-Kravis E Medication utilization for targeted symptoms in children and adults with fragile X syndrome: US survey.., Journal of Developmental and Behavioral Pediatrics; January 2012;33(1):62-9. [Read Summary]

Corresponding author: Jon Baio, EdS, National Center on Birth Defects and Developmental Disabilities, CDC.Prevalence of Autism Spectrum Disorders — Autism and Developmental Disabilities Monitoring Network, 14 Sites, United States, 2008. Morbidity and Mortality Weekly Report. March 30, 2012. 61(SS03); 1-19 [Community Report]

Barile JP, Thompson WW, Zack MM, Krahn GL, Horner-Johnson W, Haffer SC. Activities of daily living, chronic medical conditions, and health-related quality of life in older adults. Journal of Ambulatory Care Management. 2012 Oct;35(4):293-304. http://journals.lww.com/ambulatorycaremanagement/Abstract/2012/10000/Activities_of_Daily_Living,_Chronic_Medical.5.aspx

Barradas DT, Barfield WD, Wright V, D’Angelo D, Manning SE, Schieve LA., Assessment of assisted reproductive technology use questions: pregnancy risk assessment monitoring system survey, 2004
Public Health Reports. September 2012;127(5):516-23.

Berrigan D, Carroll DD, Fulton JE, Galuska DA Brown DR, Dorn JM, Armour BS. Vital Signs: Walking Among Adults — United States, 2005 and 2010. MMWR 2012; 61(31); 595-601.
[Read summary]

CDC , Identifying Infants with Hearing Loss — United States, 1999—2007
Morbidity and Mortality Weekly Report; 2010; 59(08);220-23. [Read summary]

CDC. Prevalence of Autism Spectrum Disorders — Autism and Developmental Disabilities Monitoring Network, 14 Sites, United States, 2008. Surveillance Summaries, Morbidity and Mortality Weekly Report; March 30, 2012/61(SS03);1-19. http://eric.ed.gov/?id=ED530639

Cyrus A, et al., Clinic-Based Infant Screening for Duchenne Muscular Dystrophy: A Feasibility Study
PLoS Currents Muscular Dystrophy; May 2, 2012

Gaffney M, Green DR, Gaffney C Newborn Hearing Screening and Follow-up: Are Children Receiving Recommended Services (2010) Public Health Reports; 2010; 125(02); 199 – 207.
[Read article]

Hinkle SN, Schieve LA, Stein AD, Swan DW, Ramakrishnan U, Sharma AJ, Associations between maternal prepregnancy body mass index and child neurodevelopment at 2 years of age.
International Journal of Obesity. September 11, 2012 [Epub ahead of print]

Hinkle SN, Sharma AJ, Swan DW, Schieve LA, Ramakrishnan U, & Stein AD, Excess Gestational Weight Gain Is Associated with Child Adiposity among Mothers with Normal and Overweight Prepregnancy Weight Status. The Journal of Nutrition. September 5, 2012

Hinkle SN, Sharma AJ, Schieve LA, Ramakrishnan U, Swan DW, Stein AD, Reliability of Gestational Weight Gain Reported Postpartum: A Comparison to the Birth Certificate., Maternal Child Health Journal. June 16, 2012.

Howie, Erin K., et al. “Availability of physical activity resources in the environment for adults with intellectual disabilities.” Disability and health journal 5.1 (2012): 41-48. http://www.sciencedirect.com/science/article/pii/S193665741100094X

Supplement: Improving the System of Care for Infants and Children with Early Hearing Loss,Pediatrics; Vol. 126; Supplement August 2010. [Read articles]

Intervening factors for public health to consider for improving health-related quality of life among older adults with and without functional limitations. American Journal of Public Health. 102(3), 496-502. Thompson, W., Zack, M.M., Krahn, G.L., Andresen, E., & Barile, J.P. (2012) [Read summary]

Kancherla V, Amendah DD, Grosse SD, Yeargin-Allsopp M, Van Naarden Braun K., Medical expenditures attributable to cerebral palsy and intellectual disability among Medicaid-enrolled children. Res Dev Disabil. 2012 May; 33(3): 832-840.

Leeb RT, Bitsko RH, Merrick MT, Armour BS., Does childhood disability increase risk for child abuse and neglect? Journal of Mental Health Research in Intellectual Disabilities. 2012;5(1):4-31.
[Read summary]

Maenner, MJ; Benedict, RE; Arneson CL; Yeargin-Allsopp M; Wingate MS; Kirby RS; Van Naarden Braun K; Durkin MS. Children with cerebral palsy: racial disparities in functional limitations.
Epidemiology. 2012 Jan; 23(1):35-43.

Mendell JR, et al., Evidence Based Path to Newborn Screening for Duchenne Muscular Dystrophy
Annals of Neurology; 2012 Mar;71(3):304-13.

Natarajan G, Shankaran S, McDonald SA, Das A, Ehrenkranz RA, Goldberg RN, Stoll BJ, Tyson JE, Higgins RD, Schendel D, Hougaard DM, Skogstrand K, Thorsen P, Carlo WA., Association Between Blood Spot Transforming Growth Factor-β and Patent Ductus Arteriosus in Extremely Low-Birth Weight Infants. Pediatric Cardiology. June 10, 2012 [Epub ahead of print]

Parner ET, Baron-Cohen S, Lauritsen MB, Jørgensen M, Schieve LA, Yeargin-Allsopp M, Obel C., Parental Age and Autism Spectrum Disorders, Annals of Epidemiology. March 12, 2012. 22(3):143-50. [E-pub January 24, 2012.]

Parner ET, Baron-Cohen S, Lauritsen MB, Jørgensen M, Schieve LA, Yeargin-Allsopp M, Obel C., Parental Age and Autism Spectrum Disorders, Annals of Epidemiology. March 2012.

Patterson, Brandon J., et al. “Living with disability: patterns of health problems and symptom mediation of health consequences.” Disability and health journal 5.3 (2012): 151-158. http://www.sciencedirect.com/science/article/pii/S1936657412000428

Peacock G, Amendah D, Ouyang L, Grosse S., Autism spectrum disorders and health care expenditures: The effects of co-occurring conditions Journal of Developmental and Behavioral Pediatrics. January 2012.

Peacock G, Amendah D, Ouyang L, Grosse S., Autism spectrum disorders and health care expenditures: The effects of co-occurring conditions. Journal of Developmental and Behavioral Pediatrics. January 2012. 33(1):2-8

Peacock G, Lin SC. Enhancing early identification and coordination of intervention services for young children with autism spectrum disorders: Report from the Act Early Regional Summit Project. Disability and Health Journal, 2012 Jan;5(1):55-9. http://www.sciencedirect.com/science/article/pii/S1936657411000938

Pettygrove S, Pinborough-Zimmerman J, John Meaney F, Van Naarden Braun K, Nicholas J, Miller L, Miller J, Rice C., Predictors of ascertainment of autism spectrum disorders across nine US communities. Journal of Autism and Developmental Disorders. December 2012

Prevalence of Autism Spectrum Disorders — Autism and Developmental Disabilities Monitoring Network, 14 Sites, United States, 2008. Morbidity and Mortality Weekly Report. March 2012.

Radcliff E, Cassell CH, Tanner JP, Kirby RS, Watkins S, Correia J, Peterson C, Grosse SD.,
Hospital use, associated costs, and payer status for infants born with spina bifida, Birth Defects Res A Clin Mol Teratol. 2012 Dec;94(12):1044-53. [Read summary] [Read key findings]

Rendall-Mkosi K, Morojele N, London L, Moodley S, Singh C, Girdler-Brown B, A randomized controlled trial of motivational interviewing to prevent risk for an alcohol-exposed pregnancy in the Western Cape, South Africa, Addiction; 2012; 108:725-732, [Read Summary]

Seltzer MM, Baker MW, Hong J, Maenner M, Greenberg J, Mandel D Prevalence of CGG Expansions of the FMR1 Gene in a US Population-Based Sample, American Journal of Medical Genetics Part B Neuropsychiatric Genetics; 2012 Jul;159B(5):589-97. [Read article]

Underbjerg M, Kesmodel US, Landrø NI, Bakketeig L, Grove J, Wimberley T, Kilburn TR, Sværke C, Thorsen P, Mortensen EL, The effects of low to moderate alcohol consumption and binge drinking in early pregnancy on selective and sustained attention in 5-year-old children
BJOG: An International Journal of Obstetrics & Gynaecology; 2012; doi: 10.1111/j.1471-0528.2012.03396.x, [Read Summary]

Vital Signs: Binge Drinking Among Women and High School Girls – United States, 2011
Morbidity and Mortality Weekly Report; January 11, 2013; 62(01); 9-13 CDC
[Read article]

Wiggins LD, Piazza V, Robins DL., Comparison of a broad-based screen versus disorder-specific screen in detecting young children with an autism spectrum disorder. Autism. December 2012.

Wiggins LD, Robins DL, Adamson LB, Bakeman R, Henrich CC.Support for a dimensional view of autism spectrum disorders in toddlers. Journal of Autism and Developmental Disorders. February 2012.

Wiggins LD, Robins DL, Yeargin-Allsopp M., Short report: Improving record-review surveillance of young children with an autism spectrum disorder. Autism. September 2012.

Wiggins LD, Baio J, Schieve L, Lee LC, Nicholas J, Rice CE., Retention of autism spectrum diagnoses by community professionals: findings from the autism and developmental disabilities monitoring network, 2000 and 2006. Journal of Developmental and Behavioral Pediatrics. June 2012.

Zhu JL, Hasle H, Correa A, Schendel D, Friedman JM, Olsen J, Rasmussen SA., Survival among people with Down syndrome: a nationwide population-based study in Denmark. Genetics in Medicine. August 9, 2012 [Epub ahead of print]

2011 NCBDDD Notable Scientific Publications

Amendah, D., Grosse, S.D., Peacock, G., & Mandell, D.S. (2011). The economic costs of autism: A review. In D. Amaral, D. Geschwind, & G. Dawson (Eds.), Autisms (pp. 1347-1360). Oxford: Oxford University Press. http://oxfordmedicine.com/view/10.1093/med/9780195371826.001.0001/med-9780195371826-chapter-078

Ann Epidemiol, 21(12):930-45. Epub 2011 Oct 13. Boyle CA, Boulet S, Schieve L, Cohen RA, Blumberg SJ, Yeargin-Allsopp M, Visser S, Kogan MD.(2011). Trends in the prevalence of developmental disabilities in US children, 1997-2008. Pediatrics, 127(6):1034-42. http://pediatrics.aappublications.org/content/127/6/1034.full.html

Avchen, R., Wiggins, L.D., Devine, O., Van Naarden-Braun, K., Rice, C., Hobson, N.C., Schendel, D., & Yeargin-Allsopp, M. (2011). Evaluation of a records-review surveillance system used to determine the prevalence of autisms. J Autism Dev Disord, 41(2):227-36. http://link.springer.com/search?query=Evaluation+of+a+records-review+surveillance+system+used+to+determine+the+prevalence+of+autisms&search-within=Journal&facet-journal-id=10803#page-1

Benedict RE, Patz J, Maenner MJ, Arneson CL, Yeargin-Allsopp M, Doernberg NS, Van Naarden Braun K, Kirby RS, Durkin MS. (2011). Feasibility and reliability of classifying gross motor function among children with cerebral palsy using population-based record surveillance. Paediatr Perinat Epidemiol, 25(1):88-96. http://onlinelibrary.wiley.com/doi/10.1111/j.1365-3016.2010.01164.x/abstract

Cannell, Michael B., et al. “Age group differences in healthcare access for people with disabilities: are young adults at increased risk?.” Journal of Adolescent Health 49.2 (2011): 219-221. http://www.sciencedirect.com/science/article/pii/S1054139X1000772X

Courtney Long E, Armour B, Frammartino B, Miller J. Factors associated with self reported mammography use for women with and women without a disability. J Women’s Health (Larchmt) 011;20(9):1279–86. http://online.liebertpub.com/doi/abs/10.1089/jwh.2010.2609

Holtzer C, Meaney FJ, Andrews J, Ciafaloni E, Fox DJ, James KA, Lu Z, Miller L, Pandya S, Ouyang L, Cunniff C. Disparities in the diagnostic process of Duchenne and Becker muscular dystrophy. Genet Med 2011;10. [Epub ahead of print]http://www.nature.com/gim/journal/v13/n11/full/gim2011158a.html

Kirby RS, Wingate MS, Van Naarden Braun K, Doernberg NS, Arneson CL, Benedict RE, Mulvihill B, Durkin MS, Fitzgerald RT, Maenner MJ, Patz JA, Yeargin-Allsopp M. (2011). Prevalence and functioning of children with cerebral palsy in four areas the United States in 2006: A report from the Autism and Developmental Disabilities Monitoring Network. Res Dev Disabil, 32(2):462-9. http://www.sciencedirect.com/science/article/pii/S089142221000332X

Kusano, Claudia T., et al. “Adult informal caregivers reporting financial burden in Hawaii, Kansas, and Washington: results from the 2007 Behavioral Risk Factor Surveillance System.” Disability and health journal 4.4 (2011): 229-237. http://www.sciencedirect.com/science/article/pii/S1936657411000689

Houlihan, Bethlyn Vergo, et al. “A telerehabilitation intervention for persons with spinal cord dysfunction.” American Journal of Physical Medicine & Rehabilitation 90.9 (2011): 756-764. http://journals.lww.com/ajpmr/Abstract/2011/09000/A_Telerehabilitation_Intervention_for_Persons_with.9.aspx

Jarquin VG, Wiggins LD, Schieve LA, Van Naarden-Braun K. (2011). Racial disparities in community identification of autisms over time; Metropolitan Atlanta, Georgia, 2000-2006. J Dev Behav Pediatr, 32(3):179-87. http://www.ncbi.nlm.nih.gov/pubmed/21293294

Krahn GL, Campbell VA. Evolving views of disability and public health: The roles of advocacy and public health. Disabil Health J 2011;4(1):12. http://www.disabilityandhealthjnl.com/article/S1936-6574(10)00047-6/abstract

Obi O, Van Naarden Braun K, Baio J, Drews-Botsch C, Devine O, Yeargin-Allsopp M. (2011). Effect of incorporating adaptive functioning scores on the prevalence of intellectual disability. Am J Intellect Dev Disabil, 116(5):360-70. http://aaiddjournals.org/doi/abs/10.1352/1944-7558-116.5.360?=

Reichard R, Holtus H, Fox MH. Health disparities among adults with physical disabilities or cognitive limitations compared to individuals with no disabilities in the United States. The Disability and Health Journal 2011;4(2):59-67. http://www.disabilityandhealthjnl.com/article/S1936-6574(10)00037-3/abstract

Schendel DE, Diguiseppi C, Croen LA, Fallin MD, Reed PL, Schieve LA, et al., The Study to Explore Early Development (SEED): A Multisite Epidemiologic Study of Autism by the Centers for Autism and Developmental Disabilities Research and Epidemiology (CADDRE) Network
Journal of Autism and Developmental Disorders. October 2012. [Key Findings]

Schendel D, Nelson KB, Blair E, Neonatal encephalopathy or hypoxic-ischemic encephalopathy? Annals of Neurology. December 2012.

Schieve LA, Boulet SL, Blumberg SJ, Kogan MD, Yeargin-Allsopp M, Boyle CA, Visser SN, & Rice C. Association between parental nativity and autism spectrum disorder among US-born non-Hispanic white and Hispanic children, 2007 National Survey of Children’s Health
Disability and Health Journal. January 2012.

Schieve LA, Jarquin VG, Boulet SL, Visser SN, Rice CE, Van Naarden Braun K, Boyle CA., Concurrent medical conditions and health care use and needs among children with learning and behavioral developmental disabilities, National Health Interview Survey, 2006-2010. Research in Developmental Disabilities. March – April 2012.

Schieve LA, Rice C, Yeargin-Allsopp M, Boyle CA, Kogan MD, Drews C, and Devine O., Parent-Reported Prevalence of Autism Spectrum Disorders in US-Born Children: An Assessment of Changes within Birth Cohorts from the 2003 to the 2007 National Survey of Children’s Health Maternal and Child Health Journal. April 2012.

Schendel DE, Diguiseppi C, Croen LA, Fallin MD, Reed PL, Schieve LA, et al., The Study to Explore Early Development (SEED): A Multisite Epidemiologic Study of Autism by the Centers for Autism and Developmental Disabilities Research and Epidemiology (CADDRE) Network, Journal of Autism and Developmental Disorders. February 17, 2012. [Key Findings]

Schieve LA, Boulet SL, Blumberg SJ, Kogan MD, Yeargin-Allsopp M, Boyle CA, Visser SN, & Rice C., Association between parental nativity and autism spectrum disorder among US-born non-Hispanic white and Hispanic children, 2007 National Survey of Children’s Health
Disability and Health Journal. January 2012. 5(1):18-25. [Epub November 3, 2011.]

Schieve LA, Boulet SL, Kogan MD, Yeargin-Allsopp M, Boyle CA, Visser SN, Blumberg SJ, Rice C. (2011). Parenting aggravation and autisms: 2007 National Survey of Children’s Health. Disability Health J, 4(3):143-52. http://www.disabilityandhealthjnl.com/article/S1936-6574(10)00095-6/abstract

Schieve LA, Rice C, Devine O, Maenner MJ, Lee LC, Fitzgerald R, Wingate MS, Schendel D, Pettygrove S, van Naarden Braun K, Durkin M. (2011). Have secular changes in perinatal risk factors contributed to the recent autism prevalence increase? Development and application of a mathematical assessment model. http://www.journals.elsevier.com/research-in-developmental-disabilities/

Schelonka RL, Maheshwari A, Carlo WA, Taylor S, Hansen NI, Schendel DE, Thorsen P, Skogstrand K, Hougaard DM, Higgins RD for the Neonatal Research Network. T cell cytokines and the risk of blood stream infection in extremely low birth weight infants. Cytokine, 3(2):249-255. http://www.sciencedirect.com/science?_ob=ArticleListURL&_method=list&_ArticleListID=-840746552&_sort=r&_st=13&view=c&md5=95c16bb56d3fd18bbe7d97cdc43535da&searchtype=a

Sinclair LB, Fox MH, Betts DR. A tool for enhancing strategic health planning: a modeled use of the International Classification of Functioning, Disability and Health. International Journal of Health Planning and Management. 2012 Nov 12. doi: 10.1002/hpm.2125. http://onlinelibrary.wiley.com/doi/10.1002/hpm.2125/abstract;jsessionid=726D448D2DA0A1747CDC5E2878CA5B28.f03t02?userIsAuthenticated=false&deniedAccessCustomisedMessage=

Skogerbø Å, Kesmodel US, Wimberley T, Støvring H, Bertrand J, Landrø NI, Mortensen EL,
[Read SummaryThe effects of low to moderate alcohol consumption and binge drinking in early pregnancy on executive function in 5-year-old children, BJOG: An International Journal of Obstetrics & Gynaecology; 2012; doi: 10.1111/j.1471-0528.2012.03397.x

Thompson, W., Zack, M.M., Krahn, G.L., Andresen, E., & Bar ile, J.P. (2012) Intervening factors for public health to consider for improving health-related quality of life among older adults with and without functional limitations. American Journal of Public Health. 102(3), 496-502 http://www.ncbi.nlm.nih.gov/pubmed/22390514

2010 NCBDDD Notable Scientific Publications

Alriksson-Schmidt AI, Armour BS, Thibadeau JK. Are adolescent girls with a physical disability at increased risk for sexual violence? Journal of School Health. 2010 Jul;80(7):361-7. http://onlinelibrary.wiley.com/doi/10.1111/j.1746-1561.2010.00514.x/abstract http://www.ncbi.nlm.nih.gov/pubmed/20591102

Avchen, R., Wiggins, L.D., Devine, O., Van Naarden-Braun, K., Rice, C., Hobson, N., Schendel, D., & Yeargin-Allsopp, M. Evaluation of a Records- Review Surveillance System Used to Determine the Prevalence of Autism Spectrum Disorders. Journal of Autism and Developmental Disorders; June 22, 2010 (Epub ahead of print) http://link.springer.com/article/10.1007%2Fs10803-010-1050-7

Bitsko, R.H., Visser, S.N., Schieve, L.A., Ross, D.S., Thurman, D.J., & Perou, R. (2009). Unmet Health Care Needs Among Children With Special Health Care Needs With Neurological Conditions. Pediatrics, 124: S343-S351. http://pediatrics.aappublications.org/content/116/3/e426.full

Brown, Rachel S., et al. “Evaluation of medical student performance on objective structured clinical exams with standardized patients with and without disabilities.” Academic Medicine 85.11 (2010): 1766-1771. http://journals.lww.com/academicmedicine/Abstract/2010/11000/Evaluation_of_Medical_Student_Performance_on.40.aspx

Bushby K, et al., Diagnosis and management of Duchenne muscular dystrophy, part 1: diagnosis, and pharmacological and psychosocial management, Lancet Neurology; 2010 Jan;9(1):77-93

Bushby K, et al., Diagnosis and management of Duchenne muscular dystrophy, part 2: implementation of multidisciplinary care, Lancet Neurology; 2010 Feb;9(2):177-89

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