California: CDC State Funded Programs

Level 2 Funding from 2002-2007

Lead Agency

California Department of Health Services (DHS)
EPIC Branch/Office on Disability and Health (ODH)
MS 7214, PO Box 99713
Sacramento, CA 95899-7413
http://www.dhs.ca.gov/epic/odh/
Nancy Guenther, MST, Co-Principal Investigator
ODH Take Action Project
Phone: (916) 552-9840 Fax: (916) 552-9810
Nancy.Guenther@cdph.ca.gov
H. Stephen Kaye, Ph.D., Co-Principal Investigator
ODH Take Action Project
University of California, San Francisco (UCSF), Disability Statistics Center
Phone: (415) 502-5210 Fax: (415) 502-5208
Steve.kaye@.ucsf.edu

Collaborating Agencies

Local, Regional and Statewide Collaborators:

  • Breast Health Access for Women with Disabilities – Alta Bates Medical Center
  • California Coalition Against Sexual Assault
  • California Foundation of Independent Living Centers
  • California State Council on Developmental Disabilities
  • California State Universities at Dominguez Hills and Long Beach
  • CAN Do! Project -Arc Riverside, Child Abuse and Neglect/Disability Outreach Program
  • Casa Colina Centers for Rehabilitation Center
  • Center for Disabilities Issues and the Health Professions
  • Deaf Hope
  • Developmental Disabilities Council
  • Info Use
  • Inland Empire Health Plan
  • Interagency Coordinating Council on Early Development
  • Los Angeles Department of Disability
  • San Francisco Trauma Foundation
  • State Independent Living Council
  • University of California, Los Angeles (UCLA), School of Nursing University of Laverne
  • Via Rehabilitative Services

State Governmental Collaborators:

  • DHS’ Arthritis and Osteoporosis Program, Disability Advisory Committee, Maternal, Child and Adolescent Health Branch, Long Term Care
  • Medi-Cal Benefits Branch, Office of Civil Rights, Violence Prevention Unit, Office of Women’s Health
  • Survey Research Group, Public Health Institute
  • Departments of Developmental Services, Mental Health, Rehabilitation, Social Services

Project Goal

The California Take Action Project seeks to promote the health and quality of life of people with disabilities and to prevent or lessen the effects of secondary conditions through collaborative leadership to affect environmental, policy and systems changes.

Major Program Activities

The ODH Take Action Project proposes several initiatives to coordinate a statewide response to the needs of persons with disabilities, guided by the Universal Livability: A Dream for Tomorrow, A Plan for Today: California 2005-10 Strategic Plan for Promoting the Health of People with Disabilities. ODH will serve as the coordinating center for the Take Action Project, which includes the following three focus areas and related major activities –

  1. Enhance the infrastructure and capacity building at the state level to support incorporation of people with disabilities in DHS’ policy making; data surveillance, analysis and reporting; and health promotion program planning, marketing, outreach, implementation and evaluation.
  2. Promote the Social Model of Disability research by examining existing available data and validating and including a standard set of questions, the Disability and Activity Impact Screener (DAIS), that identifies “people with disabilities” from a Social Model framework in the future.
  3. Increase the proportion of health and wellness programs and the number of facilities that provide full access to persons with disabilities through training and technical assistance to state, regional and local programs.

Evaluation and Research

UCSF, as the Take Action Research Partner, will lead and provide technical assistance for data collection, analysis, and evaluation activities for all Take Action interventions.

Surveillance

Improve and expand disability-relevant data collection in California:

  1. Advocate for inclusion of validated and standardized disability measures on the California Behavioral Risk Factor Surveillance Survey (BRFSS), the California Health Interview Survey (CHIS), and the California Women’s Health Survey (CWHS).
  2. Advocate for improved and expanded measures of barriers to health care, receipt of preventive and general health services, and health issues and environmental barriers that limit economic or social participation.
  3. Advocate for and propose methods of improving overall response and self-response of people with disabilities to the California BRFSS, CHIS, and CWHS, as well as other DHS-sponsored surveys.

Perform general data analysis product reports:

  1. Summarize information on disabilities and barriers to health care using data fromBRFSS, CWHS, CHIS, and any other relevant data sources.
  2. Summarize information on disabilities and secondary conditions using data from BRFSS, CWHS, CHIS, and any other relevant data sources.
  3. Update Disability Data: An Inventory of Data Collection Systems to reflect changes in data sets and addition of new data sets.

Materials and Publications

Obtain any of the listed resources on the website: http://www.dhs.ca.gov/epic/odh.
Publications
Universal Livability: A Dream for Tomorrow, A Plan for Today. California 2005 10 Strategic Plan for Promoting the Health of People with Disabilities. Sacramento (CA): Department of Health Services, Epidemiology and Prevention for Injury Control Branch (EPIC), Office on Disability and Health; March 2005.
Women with Disabilities and Their Health, Health Care Access, and Utilization. Women’s Health Report. Sacramento: Department of Health Services, Office on Women’s Health (OWH); 2004. (pending approval)
Disability Data: Inventory of Data Collection Systems. Sacramento (CA): Department of Health Services, Epidemiology and Prevention for Injury Control (EPIC), Office on Disability and Health; 2004. March 2005.
King G. Californians with Activity Limitations: Data from the California Health Interview Survey 2001. EPICgram No.7. December 2003.
King G. Breast Cancer Screening Among Women with Disabilities: Data from the California Behavioral Risk Factor Survey 2002. EPICgram No.8. September 2004.

Technical Assistance

  1. Advisory Committee Coordination
  2. Partnership Development
  3. Strategic Plan Development
  4. Data Collection, Analysis and Reporting
  5. Universal Livability
  6. Proposal writing