Dagmar Amtmann, Ph.D., Alyssa M. Bamer, M.P.H., Jiseon Kim, Ph.D., Hyewon Chung, Ph.D., Rana Salem, M.S. Disability and Health Journal, Volume 11, Issue 1, January 2018, Pages 99-107 DOI: https://doi.org/10.1016/j.dhjo.2017.04.008 Background Individuals with multiple sclerosis (MS) report fatigue, pain, depression, cognitive difficulties, and other symptoms. It is often difficult to compare symptoms across studies and […]
Abstract Topics: Healthcare Transition
The Cash and Counseling model of self-directed long-term care: Effectiveness with young adults with disabilities
Melissa L. Harry, Ph.D., M.S.W, Kevin J. Mahoney, Ph.D., M.S.W., Ellen K. Mahoney, Ph.D., Ce Shen, Ph.D. Disability and Health Journal, Vol. 10, Issue 4, p492–501 DOI: http://dx.doi.org/10.1016/j.dhjo.2017.03.001 Background Young adults with disabilities face numerous barriers to independence and achieving markers of adulthood. Qualitative evidence suggests that flexible, self-directed budgets for purchasing home and community-based services might help fill an identified […]
“Thrust into adulthood”: Transition experiences of young adults with cerebral palsy
Nancy Bagatell, Ph.D., OTR/L., Dara Chan, Sc.D., CRC., Kimberly Karrat Rauch, D.O., Deborah Thorpe, Ph.D., PT. Disability and Health Journal, January 2017, DOI: http://dx.doi.org/10.1016/j.dhjo.2016.09.008 Background The transition to adulthood, the gradual change in roles and responsibilities, is identified as a challenging time for adolescents and young adults with physical disabilities, including those with cerebral palsy. Health care, […]
Enablers and barriers of men with Duchenne muscular dystrophy transitioning from an adult clinic within a pediatric hospital
Sally Lindsay, Ph.D., Laura McAdam, M.D., Tania Mahendiran, B.Sc. (Candidate) Disability and Health Journal, January 2017, Volume 10, Issue 1, Pages 73–79 DOI: http://dx.doi.org/10.1016/j.dhjo.2016.10.002 Background Young men with Duchenne muscular dystrophy (DMD) live into adulthood and need specialized care. However, services for adults are fragmented. We know little about young men’s experiences, their parents, and clinicians who support them […]
Youth and parents’ experiences of a new inter-agency transition model for spina bifida compared to youth who did not take part in the model
Sally Lindsay, Ph.D., Melissa Fellin, Ph.D., Heather Cruickshank, B.A., Amy McPherson, Ph.D., Joanne Maxwell, M.Sc. Disability and Health Journal, Volume 9, Issue 4 Published online: May 27, 2016 DOI: http://dx.doi.org/10.1016/j.dhjo.2016.05.009 Background Young adults with spina bifida are underserved in health care and are at risk as they transition to adult health care. A pediatric rehabilitation hospital and […]
Adults aging ‘with’ and ‘into’ paralysis: Epidemiological analyses of demography and health
Alicia Dixon-Ibarra, Ph.D., M.P.H., Gloria Krahn, Ph.D., M.P.H., Heidi Fredine, M.P.H., Anthony Cahill, Ph.D., Susan Jenkins, Ph.D. Disability and Health Journal, Volume 9, Issue 4 Published online: June 21, 2016 DOI: http://dx.doi.org/10.1016/j.dhjo.2016.06.003 Background Survival for many individuals with paralysis is increasing, making this population a larger subset of the aging population (Molton, & Jensen, 2010). Yet little is known about […]
A wellness program for individuals with disabilities: Using a student wellness coach approach
Hui-Ju Young, Ph.D., Melissa L. Erickson, M.S., Kristen B. Johnson, B.S., R.D., L.D., Mary Ann Johnson, Ph.D., Kevin K. McCully, Ph.D. Disability and Health Journal Published July 2015 Volume 8, Issue 3, Pages 345–352 DOI: http://dx.doi.org/10.1016/j.dhjo.2014.12.003 Background Individuals with disabilities are at higher risk of health conditions; thus, there is a need to provide hands-on opportunities for pre-healthcare professionals to interact with […]
Healthcare Transition Research: Access to Care
Access to care for youth with special health care needs in the transition to adulthood. Lotstein DS, Inkelas M, Hays RD, Halfon N, Brook R. Department of Pediatrics, David Geffen School of Medicine, University of California-Los Angeles, Los Angeles, California 90024, USA. dlotstein@mednet.ucla.edu J Adolesc Health. 2008 Jul;43(1):23-9. Epub 2008 Apr 25. Comment in: J […]
Healthcare Transition Research: Providers (Nurses, Professionals)
Dimensions of the transition service coordinator role. Betz CL, Redcay G. University of Southern California Center for Excellence in Developmental Disabilities, Children’s Hospital, Los Angeles, USA. J Spec Pediatr Nurs. 2005 Apr-Jun;10(2):49-59. ISSUES AND PURPOSE: This article describes the development and implementation of an innovative advanced practice role, as a transition service coordinator for nurses […]
Healthcare Transition Research: Families
Addressing transition to adult health care for adolescents with special health care needs. Scal P, Ireland M. Division of General Pediatrics and Adolescent Health, University of Minnesota Medical School, Minneapolis, Minnesota 55455, USA. scal0005@umn.edu Pediatrics. 2005 Jun;115(6):1607-12. OBJECTIVE: To determine the factors associated with addressing the transition from pediatric to adult-oriented health care among US […]