Engagement Coordinator Job Description The American Association on Health and Disability (AAHD) is a cross disability national non-profit 501(c) (3) organization dedicated to promoting public health initiatives for children and adults with disabilities. AAHD accomplishes its mission through research, education, policy and public awareness efforts at the federal, state and community level. AAHD strives to […]
Category: All of Us News
Global Accessibility Awareness Day Twitter Chat
In celebration of Global Accessibility Awareness Day, we invite you to join us May 18th from 12:00 – 1:00pm ET for a Twitter Chat at the intersection of disability and health. We will dive into some Accessibility 101 and explore how expanding participation in biomedical research can advance health equity. We will also share […]
Disability Advocates Announce Endorsement of the All of Us Research Program
Press Release Rockville, MD – A nationwide coalition of disability advocates celebrate the release of “No Research About Us Without Us “a statement endorsing the National Institutes of Health’s All of Us Research Program, an effort to engage more than one million people from across the United States in biomedical research to advance health care […]
All of Us Research Program Releases First Genomic Data, Creating Unprecedented Platform for Health Discoveries
Precision medicine effort leverages diverse participant base and innovative technology to drive new research The National Institutes of Health’s All of Us Research Program has made its initial genomic data available, bringing nearly 100,000 whole genome sequences onto its data analysis platform, the Researcher Workbench. The American Association on Health and Disability, along with our […]
Announcing: The All of Us Outreach Circle
[…]
How the All of Us Research Program Protects My Information
This video explains some of the ways the All of Us Research Program protects participant information—from data collection through research. It answers FAQs, touches on Certificates of Confidentiality, and describes what scientists can see in the Research Hub. Graphics explain data encryption and show an example of how participant information is de-identified. About the […]
All About the Social Determinants of Health
Addressing and improving health disparities begins with you COVID-19 has hit some communities very hard. That has put new attention on a long-term problem in the United States — health disparities. Health disparities are differences in health that harm disadvantaged communities. Understanding what causes these differences is key to addressing them. DNA alone does […]
New Podcast – Health Research Disparities
In this podcast episode, AAHD’s Director of Public Health Programs, Karl Cooper joins Alexia Smalling of the Southwest ADA Center for a conversation on the history and future of biomedical research. Karl discusses the factors that have contributed to low representation of marginalized communities in clinical trials, and the importance of improving participation to […]