AAHD is a member of the National Health Council (NHC). AAHD submitted statements to CMS with PIPC and MAPRx. The April 14 NHC submission to CMS is here: PDF. […]
Policy Updates
The American Association on Health and Disability plays an important role in disability policy and advocacy at the national level. AAHD strives to ensure that the needs of people with disabilities receive attention and respect on the national legislative agenda. AAHD is involved in numerous disability coalitions and networks that address the needs of people with disabilities. Please visit the Policy site to learn more about our activities in this area. AAHD staff maintain an active role in Washington, DC to ensure that health promotion and wellness for people with disabilities is on the disability and healthcare agenda. AAHD staff have positions on the APHA, Disability Section, Executive Council; the CDC, NCBDDD, Executive Committee; Consortium for Citizens with Disabilities-CCD and serve on the National Health Council; Coalition for Health Funding; Disability Rehabilitation and Research Coaltion; Coalition for Whole Health, Patient Care Primary Care Collaborative; and other coalitions advocating for policy that works towards reducing health disparities between people with disabilities and the general population and reducing the incidence of secondary conditions in children and adults with disabilities.
Medicare Drug Price Negotiation – Beneficiary Protections Including Prohibiting QALYs
AAHD and the Lakeshore Foundation have joined the MAPRx (Medicare Access for Patients Rx) Coalition letter to CMS on Medicare Drug Price Negotiation possible rules. The comments focus on beneficiary protections including prohibiting the use of QALY (Quality-Adjusted Life Years) methods. The April 14 MAPRx letter to CMS is here: PDF. […]
QALYs – and Medicare Drug Price Negotiation – Disability and Patient Advocate Comments
AAHD and the Lakeshore Foundation have joined a PIPC (Partnership To Improve Patient Care) led coalition letter affirming that CMS should not, in any manner, allow QALYs (Quality-Adjusted Life Years) methods in Medicare Drug Price Negotiation rules. The April 14 PIPC letter to CMS is here: PDF. […]
Standardizing Long-Term Services and Supports (LTSS) Expenditure Data
AAHD and the Lakeshore Foundation have joined the Disability and Aging Collaborative (DAC) letter to CMS requesting standardized LTSS expenditure data collection, analysis, and public reporting. The April 13 letter is here: PDF. […]
Medicaid Non-Emergency Medical Transportation
Available here are the CMS Administrator March 27 response to three members of the House of Representatives (Carter; Bishop; Cardenas), February 15 letter to HHS and CMS, and their legislation HR 8841 – on efforts to expand access to Medicaid Non-Emergency Medical Transportation: […]
HHS Assistive Technology Act Programs – Coalition Appropriations Request
AAHD and the Lakeshore Foundation have joined the Consortium for Constituents with Disabilities (CCD) Task Force on Technology and Telecommunications request to Congress to fund the HHS Assistive Technology Act programs. Available here are the April 6 letters to the House and the Senate Appropriations Committee. […]
Senate Committee on HELP – Health Workforce RFI – Mental Illness and Substance Use Disorder
We posted on March 21, AAHD and the Lakeshore Foundation submission to a Senate Committee on Health, Education, Labor, and Pensions (HELP) RFI on health workforce issues. Our comments focused on non-traditional workers – community-based, non-medical credentialed, and a lived-experience framework serving persons with disabilities, aged individuals requiring long-term services and supports (LTSS), persons with […]
Senate Committee on HELP – Health Workforce RFI – Medicaid HCBS and LTSS Submissions
We posted on March 21, AAHD and the Lakeshore Foundation submission to a Senate Committee on Health, Education, Labor, and Pensions (HELP) RFI on health workforce issues. Our comments focused on non-traditional workers – community-based, non-medical credentialled, and a lived-experience framework serving persons with disabilities, aged individuals requiring long-term services and supports (LTSS), persons with […]
DEA Telehealth Prescribing Proposed Rule – Need More Flexibility Particularly for Mental Health
AAHD and the Lakeshore Foundation have joined 70 organizations, led by the Alliance for Connected Care, asking for more flexibility, particularly for mental health, in the DEA (Drug Enforcement Administration) proposed rules governing the prescription of controlled substances. The March 31 letter is here: PDF. […]
Medicare Part D Medications – Affordability and Out-Of-Pocket Spending Caps
AAHD and the Lakeshore Foundation have joined 66 organizations led by the Alliance for Aging Research writing CMS to accelerate its work implementing the “Inflation Reduction Act” Medicare Part D medications patient affordability protections. The March 27 coalition letter is here: PDF. […]