Voices of All of Us: Stephen Mikita

Disability Advocate Stephen Mikita Pushes the Bounds and Helps Guide Medical Research “All of Us is not just about data points. It’s about listening to people’s lives. Life is a difficult proposition for everybody.”—Stephen Mikita, All of Us participant partner and retired assistant attorney general of Utah Stephen Mikita not only defied the odds, he redefined them. At […]

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Week of June 14, 2022

Long COVID Could Change How We Think About Disability June 7 Washington Post front page article Learn more here. Diversity of Disability Pathways for Middle-Aged Adults: Implications for Services and Supports June 8 NIDILRR NARIC shared CEDAR-Midwest infographic Learn more here. Disability and the Digital Divide June 10 DOL ODEP shared paper Learn more here. […]

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About the COPE Survey

The All of Us Research Program first released the COVID-19 Participant Experience (COPE) survey in May 2020 to trace the health experiences of participants throughout the pandemic. This past fall, the program made that information available to researchers studying the impacts of COVID-19 on mental and physical health. This new infographic shows the range of […]

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Series Recap: Getting the Most from your Health Insurance

This spring, we hosted a series of live interviews with disability community members to learn how they make the most of their private or public insurance coverage. Watch the full series to learn more about their tips and tricks for accessing care. Rehabilitation/Habilitation A conversation with Chase Bearden, Deputy Director of the Coalition of Texans […]

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Week of April 5, 2022

Medicaid Home-and-Community-Based Services (HCBS) – Waiting Lists Excerpts from last week AAHD news – The Case for Inclusion: Blazing Trails To Sustainability for Community Disability Services; March ANCOR and UCP annual inclusion report Learn more here. Understanding and Addressing Unmet Needs in HCBS (Home-and-Community-Based Services) Through the Lens of Person-Centered Practices March 31 ACL funded, […]

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Week of March 29, 2022

The Case for Inclusion: Blazing Trails To Sustainability for Community Disability Services March ANCOR and UCP annual inclusion report Learn more here. Influence of Disability Models on Person-Centeredness in Home-and-Community-Based Services March 23 NIDILRR NARIC announced Shirley Ryan Ability Lab HCBS Center research brief Learn more here. Reducing Costs for Families and States By Increasing […]

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