Enablers and barriers of men with Duchenne muscular dystrophy transitioning from an adult clinic within a pediatric hospital

Sally Lindsay, Ph.D., Laura McAdam, M.D., Tania Mahendiran, B.Sc. (Candidate) Disability and Health Journal, January 2017, Volume 10, Issue 1, Pages 73–79 DOI: http://dx.doi.org/10.1016/j.dhjo.2016.10.002   Background Young men with Duchenne muscular dystrophy (DMD) live into adulthood and need specialized care. However, services for adults are fragmented. We know little about young men’s experiences, their parents, and clinicians who support them […]

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AAHD Announces the Appointment of Dr. Charles E. Drum, MPA, JD, Ph.D as AAHD Inaugural Visiting Scholar Learn more here. How States Can Help Medicaid Managed Care Plans Invest in Social Supports – Rate Setting Tools January 31 Commonwealth Fund announced report Learn more here. State and Territorial Health Profiles January 26 Association of State […]

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Week of January 30, 2018

Compounded Disparities: Health Equity at the Intersection of Disability, Race, and Ethnicity January National Academy of Medicine commissioned paper Learn more here. 7 CDC Disability Research Grant Opportunities January 25 CDC NCBDDD and AAHD Disability Research and Dissemination Center announcement Learn more here. Beneficiaries Dually Eligible for Medicare and Medicaid: MACPAC Annual Data Book January […]

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Week of January 16, 2018

Guide To Community Preventive Services and Disability January 8 CDC Community Guide shared December American Journal of Preventive Medicine article Learn more here. Health and Disability: 101 Training for Health Department Employees January 9 National Association of County & City Health Officials announced on-line training materials Learn more here. Using Community Partnerships To Integrate Health […]

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Week of January 9, 2018

Increasing the Capacity of Health Care Providers To Provide Quality Health Care for Persons with Disabilities December Ohio State University – Center for Excellence in Developmental Disabilities – on-line training programs Learn more here. Disability Stigma and Your Patients – Fact Sheet for Health Care Providers December University of Washington Healthy Aging & Physical Disability […]

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Week of December 12, 2017

Strengthening Medicaid Long-Term Services and Supports in an Evolving Policy Environment: A Toolkit for States December 7 Center for Health Care Strategies toolkit Learn more here. Medicaid “Money Follows the Person” – CMS Annual Report December 4 CMS announced report Learn more here. Building Complex Care Programs: A Roadmap for States National Governors’ Association, Center […]

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Week of December 5, 2018

People Living with Disabilities: Health Equity, Health Disparities, & Health Literacy November 28 National Academy of Medicine workshop proceedings Learn more here. Experiences of Medicaid Enrollees with Disabilities – CMS CAHPS Issue Brief & Data November 21 ACL shared CMS Center for Medicaid & CHIP issue brief summary of Consumer Assessment of Healthcare Providers & […]

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