Coalitions & Partnerships

AAHD Partners

The American Association on Health and Disability (AAHD) collaborates with numerous non-profit organizations; state departments of health, developmental disabilities, and mental health; universities; and private corporations, including health plans. AAHD staff previously served as Chair of the Friends of the NCBDDD at CDC and Chair of the Friends Advocacy Coalition. AAHD serves on the American Public Health Association, Disability Section executive committee. AAHD staff has served on the SAMHSA National Wellness Campaign steering committee. AAHD staff serves on the NACCHO National Disability Workgroup and has served on the HHS ONC (Office of the National Coordinator for Health Information Technology) Health IT Policy Committee, Consumer Empowerment Workgroup.

AAHD serves on National Quality Forum (NQF) Measure Applications Partnership (MAP) Coordinating Committee (July 2021-present); NQF TEP on Social and Functional Risk Adjustment Within Quality Measurement (April 2022-present); NQF Medicare Hospital Star Ratings TEP (June-November 2019 and September-October 2020); workgroup on Medicaid adult measures (appointed 2016 and 2017); Medicaid-CHIP Scorecard Committee (appointed October 2018); and Measure Sets and Measurement Systems TEP (June 2019-August 2020). AAHD was a member of the NQF workgroup on persons dually eligible for Medicare and Medicaid (July 2012-July 2017) and NQF population health task and was the NQF representative of the Consortium for Citizens with Disabilities (CCD) Task Force on Long Term Service (2012-2017).  AAHD served as the 2016-2017 NQF duals workgroup liaison to the NQF clinician workgroup; 2015-2016 and 2014-2015 NQF duals workgroup liaison to the NQF PAC/LTC workgroup.

AAHD serves on the National Committee for Quality Assurance (NCQA) Consumer Advisory Council and serves on two committees of the Core Quality Measure Collaborative (CQMC). AAHD serves on numerous public policy coalitions (list below) and listed below are sources of information that we regularly monitor, attend their webinars, join joint projects, collaborate on public policy issues, and disseminate to our 8,000 newsletter readers.

AAHD Coalitions – Active AAHD Participation

  • Coalition for Whole Health (CWH) – a coalition whose purpose is to integrate mental health, mental illness, and substance use disorder services and supports.
  • Core Quality Measure Collaborative (CQMC) – membership effort staffed by AHIP and NQF
  • CCD – New (April 21, 2022) CCD Name: Consortium for Constituents with Disabilities. CCD Task Force on Health – a coalition whose purpose is to promote health and wellness for persons with disabilities in current and emerging national health policy issues.
  • CCD – New (April 21, 2022) CCD Name: Consortium for Constituents with Disabilities. CCD Task Force on LTSS -a coalition whose purpose is to promote services and supports required to meet community inclusion goals
  • Disability and Aging Collaborative (DAC) -a coalition whose purpose is to promote home and community-based services and supports needed by persons with disabilities and who are aged.
  • Disability Rehabilitation and Research Coalition (DRRC) – a coalition whose purpose is to promote the mission and agenda of the NIDRR (NIDILRR) and NICHD NCMRR.
  • Mental Health Liaison Group (MHLG) -a coalition whose purpose is to promote health and wellness of persons with mental illness and those facing mental health challenges
  • National Health Council (NHC) – an umbrella forum of health sector multi-stakeholders, led by voluntary health agencies representing discrete health conditions, diseases, and disabilities, operating since 1920.
  • COALITIONS – On Mailing List; Sign Documents
  • Access and Care Coalition – [United Spinal facilitated coalition of largely CMS vendors on competitive bidding and bladder issues.]
  • CDC Coalition
  • Coalition for Health Funding (CHF)
  • Coalition to Preserve Rehabilitation (CPR) – a coalition whose purpose is to maximize rehabilitation services and supports for persons with disabilities through Medicare and Medicaid
  • CCD – New name (April 21, 2022): Consortium for Constituents with Disabilities.
  • CCD Task Force on Social Security
  • Friends of CDC National Center on Birth Defects and Developmental Disabilities (NCBDDD)
  • Friends of CDC National Center on Health Statistics (NCHS)
  • Friends of AHRQ (Agency for Healthcare Research and Quality)
  • Friends of National Quality Forum
  • Friends of the National Institute for Environmental Health Sciences
  • Friends of PCORI (Patent-Centered Outcomes Research Institute)
  • [Co-administered by Alliance for Aging Research and PIPC]
  • HAB Coalition (Habilitation Benefits Coalition)
  • Health Equity and Accountability Act (HEAA) Coalition – a coalition promoting stronger and more comprehensive federal resources targeted to health equity
  • ITEM Coalition – Independence Through Enhancement of Medicare and Medicaid
  • (Assistive Technology) – a coalition whose purpose is to ensure that assistive technology, including durable medical equipment (DME) are adequately financed through the Medicare and Medicaid programs.
  • Medicaid Coalition – a coalition convened by Families USA to ensure that Medicaid meets the health needs and objectives of persons eligible for Medicaid
  • Medicaid Waiver Coalition (CBPP & Georgetown University child policy led)
  • Medicare Access for Patients Rx Coalition (MAPRx)
  • Partnership To Amend 42 CFR Part 2 – 20 organization partnership, led by the Association for Behavioral Health and Wellness, to promote integrated health services delivery for persons with substance use disorder
  • Partnership for Medicare Part D Access
  • PIPC – Partnership to Improve Patient Care – a coalition whose purpose is to promote the mission and agenda of PCORI [and Friends of PCORI Reauthorization Patient Group]

AAHD is thrilled and honored to announce that Dr. Allen Wong, DDS, EdD, DABSCD has agreed to become the Oral Health Consultant to AAHD and will advise AAHD staff on oral health for people with disabilities. Dr. Wong is Professor and Director of the AEGD Program at University of the Pacific, Arthur A. Dugoni School of Dentistry as well as the Director  of the Hospital Dentistry Program. In addition, Dr. Wong is associated with Sutter Health/CPMC Division of Transplant & Advanced Organ Therapies as the Medical Director of Oral Health. Previously, Dr. Wong was a Global Clinical Advisor of Special Olympics Special Smiles Program and Immediate Past President of AADMD. AAHD will be creating a repository of information on oral health and people with disabilities.

AAHD – Educational/Informational Forums/Federal Agencies

These are sources of information that we regularly monitor, attend their webinars, join joint projects, collaborate on public policy issues, and disseminate to our 8,000 newsletter readers.

  • AAPCHO – Association of Asian-Pacific Community Health Organizations
  • AAPD – American Association for Persons with Disabilities
  • AARP
  • ABLE (Achieving a Better Life Experience) National Resource Center: (a National Disability Institute project)
  • ACCSES
  • ADAPT
  • Administration for Community Living (ACL)-HHS
  • ACL funded Disability and Aging Business Institute (ASA and n4a (now US Aging))
  • ACL funded Housing and Services Resource Center (HSRC)
  • ADvancing States – formerly National Association of States United for Aging and Disability
  • Advocates for Human Potential
  • Agency for Healthcare Research and Quality (AHRQ)
  • AHRQ – Academy for Integrating Behavioral Health and Primary Care
  • Aligning Systems for Health (a RWJ Fd project; administered by CO School of PH
  • Alliance for Health Policy
  • Alliance of Information and Referral Systems (AIRS)
  • All-In Data for Community Health (Illinois Public Health Institute project) (RWJ funded)
  • Altarum
  • America Walks
  • America’s Physician Groups
  • American Academy of Addiction Psychiatry (AAAP)
  • American Academy of Pediatrics (AAP)
  • American Board of Family Medicine (ABFM)
  • American Enterprise Institute (AEI)
  • American Diabetes Association (ADA)
  • American Foundation for Suicide Prevention
  • America’s Health Insurance Plans (AHIP)
  • American Institutes for Research (AIR)
  • American Psychological Association (APA)
  • American Psychiatric Association (APA)
  • American Public Health Association (APHA)
  • American Public Health Association – Disability Section
  • ARCH National Respite Network
  • American Society on Aging
  • ANCOR – American Network of Community Options and Resources
  • Anthem (Health Plan)
  • Association for Behavioral Health and Wellness (ABHW -formerly AMBHA)
  • Association of Community Affiliated Plans (non-profit managed care plans)
  • Association of University Centers on Disabilities (AUCD)
  • ASAM – American Society of Addiction Medicine
  • ASNA – Autistic Self Advocacy Network
  • ASTHO – Association of State and Territorial Health Officers
  • Autism Society of America
  • Autism Speaks
  • Bazelon Center on Mental Health Law
  • Behavioral Health -Health IT Coalition
  • Bipartisan Policy Center
  • Brandeis University, Community Living Policy Center
  • Brookings Institution, Center for Health Policy
  • Camden Coalition of Healthcare Providers – Better Care Playbook (RWJ & 7 foundations funded complex care)
  • CBPP – Center for Budget and Policy Priorities
  • Caring Across the Generations
  • Census Bureau, American Community Survey
  • Center for Health Care Strategies (CHCS)
  • Center for Medicare Advocacy.
  • Center for Science in the Public Interest (CSPI)
  • Centers for Disease Control and Prevention (CDC)
  • Center on Advancing Person-Centered Practices and Systems (ACL funded, HSRI administered)
  • CMS (Centers for Medicare and Medicaid Services)
  • CMS Division of Partner Relations
  • CMS Disability and Elderly Health Programs Group
  • CMS MMCO (Medicare and Medicaid Coordination Office)
  • CMS Centers for Consumer Information and Insurance Oversight (CCIIO)
  • CMS LAN – Payment Reform Learning and Action Network
  • CMS Medicaid-CHIP
  • CMS Office of Minority Health (OMH)
  • CMS Division of Benefits and Coverage
  • CMS Division of Quality and Clinical Standards
  • CMS Medicaid Innovation Accelerator Program (part of CMMI)
  • CMS CMMI – Center for Medicare and Medicaid Innovation
  • Center on Budget and Policy Priorities (CBPP)
  • Center on Health Insurance Reform – Georgetown University
  • Center for Health Care Strategies
  • Center for Medicare Advocacy
  • City Health Dashboard (RWJ Fd funded)
  • Coalition on Human Needs
  • Coalition To End Social Isolation and Loneliness
  • Coelho Center for Disability Law, Policy, and Innovation
  • Commission for Certified Case Management
  • Commonwealth Fund
  • Community Catalyst
  • Congressional Black Caucus
  • Congressional Budget Office (CBO)
  • Congressional Research Service (CRS)
  • Congressional Social Determinants of Health (SDOH) Caucus
  • Consumers for Quality Care
  • Consumers Union
  • Consumer Voice for Quality Long Term Care
  • Core Quality Measure Collaborative (CQMC) – membership effort staffed by AHIP and NQF
  • Cornell University – NE ADA Center
  • Council for Quality and Leadership (CQL)
  • Council of State Governments
  • CSH – Corporation for Supported Housing
  • Department of Health and Human Services (see HHS below)
  • Department of Justice (DOJ)
  • Department of Transportation
  • Disability Policy Consortium, Mass
  • Disability Rights and Education Defense Fund (DREDF)
  • Duke- Margolis Center for Health Policy
  • Eno Center for Transportation (Easter Seals is a sponsor)
  • Families USA and FUSA Medicaid Coalition
  • Federation of Families for Children’s Mental Health
  • FEMA (Federal Emergency Management Administration)
  • First Focus
  • Ford Foundation
  • Forum at Harvard School of Public Health
  • Georgetown University Center for Health Insurance Reform
  • Georgetown University Center for Children and Families
  • Governing Magazine
  • Government Accountability Office (GAO)
  • Great Lakes ADA Center (NIDILRR funded)
  • Hartford Foundation
  • Harvard University, School of Public Health
  • Health Affairs
  • Health Care Leadership Council
  • Health Leads Learning Network
  • Health Management Associates (HMA)
  • HELEN – Health Equity Leadership and Exchange Network – a national network promoting stronger and more comprehensive federal resources targeted to health equity
  • HHS
  • HHS Office of Disease Prevention and Health Promotion (ODPHP)
  • HHS Office of Minority Health
  • HHS – Assistant Secretary for Planning and Evaluation (ASPE)
  • HHS – Assistant Secretary for Preparedness and Response (ASPR)
  • HHS – Healthy People 2020 and 2030
  • HHS Office of the Inspector General (OIG)
  • HHS Partnership Center (Ctr for Faith and Opportunity Initiatives)
  • HIMSS-APHL-CSTE-NAPHSIS Data Elemental to Health Collaborative
  • Home and Community-Based Services Settings Rule Informal Advocates Group
  • House Committee on Appropriations
  • House Committee on Energy and Commerce
  • House Committee on Ways and Means
  • HSRI – Human Services Research Institute
  • HRSA – Health Resources and Services Administration
  • Human Impact Partners
  • I Am Essential (coalition)
  • Independent Sector
  • Institute for Health Care Improvement
  • Institute for Patient and Family-Centered Care
  • Interagency Committee on Disability Research
  • Inseparable
  • International Society of Psychiatric Nurses (ISPN)
  • Jewish Federations of North America (JFNA)
  • Johns Hopkins University – Resilience Center on the Science of Independent Living for Inclusion and Engagement
  • Johns Hopkins University, School of Nursing
  • Johns Hopkins University, School of Public Health
  • Justice in Aging – (formerly National Senior Citizens Law Center)
  • Kaiser Commission on Medicaid and the Uninsured
  • Kaiser Family Foundation
  • Kennedy Forum (Patrick Kennedy behavioral health forum)
  • Leadership Coalition of Aging Organizations (LCAO)
  • Legal Action Center (LAC)
  • Long Term Care Discussion Group – America’s Health Insurance Plans
  • Long Term Quality Alliance (LTQA)
  • Lucille Packard Foundation for Children’s Health
  • MACPAC: Medicaid and CHIP Payment and Access Commission
  • Magellan Healthcare
  • Manatt Health
  • March of Dimes
  • Mathematica Policy Research
  • Medical Transportation Access Coalition (non-emergency medical transportation)
  • MEDPAC: Medicare Payment Advisory Commission
  • Medicare Rights Center
  • Mental Health America (MHA)
  • Milliman
  • Modern Medicaid Alliance (AHIP organized)
  • Morehouse University School of Medicine
  • NAADAC (National Association for Addiction Professionals)
  • NADD (organization for persons with co-occurring ID & MI)
  • National Academy for State Health Policy (NASHP)
  • National Academy of Medicine
  • National Academy of Social Insurance (NASI)
  • National Alliance for Caregiving
  • National Alliance to End Homelessness
  • National Alliance to Advance Adolescent Health (NAAAH)
  • NADSP – National Alliance for Direct Supports Professionals
  • NAMI – National Alliance on Mental Illness
  • National Association for Rural Mental Health (NARMH)
  • National Association of Chronic Disease Directors (NACDD)
  • National Association of City and County Health Officials (NACCHO)
  • National Association of Community Health Centers (NACHC)
  • National Association of Community Health Workers (NACHW)
  • National Association of Councils on Developmental Disabilities (NACDD)
  • National Association of Counties (NACo)
  • National Association of County Behavioral Health and Developmental Disabilities Directors (NACBHD)
  • National Association of Insurance Commissioners
  • National Association of Medicaid Directors
  • National Association of State Alcohol and Drug Abuse Directors
  • National Association of State Directors of Developmental Disabilities Services
  • National Association of State Mental Health Program Directors
  • National Association of State Mental Health Program Directors – Research Institute
  • National Center on Advancing Person-Centered Practices and Systems (an ACL  project) (NCAPPS)
  • National Center on Birth Defects and Developmental Disabilities, CDC
  • National Center on Health Statistics, CDC
  • National Center for Complex Health and Social Needs (a project of the Camden Coalition of Health Care Providers) (RWJ Fd funded)
  • National Center on Law and Elder Rights (NCLER) (ACL funded)
  • National Center for Medical Home Implementation (project of HRSA BMCH & AAP)
  • National Center for Medical Rehabilitation Research, NICHD-NIH
  • National Center for Mobility Management (FTA funded APTA-CTAA-Easter Seals partnership)
  • NCSL – National Conference of State Legislators
  • National Collaborative for Health Equity
  • National Committee on Quality Assurance (NCQA)
  • National Consumers Voice for Quality Long Term Care
  • National Council on Aging
  • National Council of Non-Profits
  • National Council on Disability
  • National Council for Mental Wellbeing – formerly National Council for Behavioral Health
  • NCMW (NCBH)– SAMHSA/HRSA/Center of Excellence for Integrated Health Solutions
  • National Council on Independent Living (NCIL)
  • National Disability Institute
  • National Disability Rights Network (NDRN)
  • National e-Health Collaborative (NeHC)
  • National Governors Association
  • National Health Law Program (NHeLP)
  • National Health Care for the Homeless Council (HRSA funded project)
  • NHIT (Network for Health Information Technology)
  • National Institutes of Health (NIH)
  • National Institute on Aging
  • National Institute on Child Health and Human Development (NICHD)
  • National Institute of Environmental Health Sciences (CDC)
  • National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR)
  • National Institute on Mental Health (NIMH)
  • National Institute on Neurological Disease and Stroke (NINDS)
  • NIH Medical Center on Rehabilitation Research (NIH) MCRR)
  • National Institute for Healthcare Management Foundation (NIHCM)
  • National League of Cities
  • National Managed LTSS Health Plan Association
  • National Medical Association
  • National Minority Quality Forum
  • National PACE Association: PACE – Program of All-Inclusive Care for the Elderly
  • National Pharmaceutical Council
  • National Quality Forum
  • National REACH Coalition: bldg. community capacity to deal with racial/ethnic equity
  • Network for Public Health Law
  • No Health without Mental Health (NHMH)
  • Office of Disability Employment Policy (ODEP) (DOL)
  • Office of Management and Budget (OMB)
  • ONC – Office of the National Coordinator for HIT
  • Pacific ADA Center (NIDILRR funded)
  • PATH PWIDD (nurses and ID-DD)
  • PFCC – Patient and Family Centered Care Partners
  • PhRMA – Pharmaceutical Manufacturers Association
  • Pharmaceutical Care Management Association
  • Population Health Alliance
  • Powers Law Firm – [formerly Powers-Pyles-Sutter-and-Verville (PPVS)]
  • Prevention Institute
  • Primary Care Collaborative (PCC)
  • Public Health Foundation
  • Public Health Institute (and Dialogue 4 Health)
  • Public Health Law Program
  • Public Health Leadership Forum
  • Robert Wood Johnson Foundation
  • RWJ Siren – Social Interventions Research and Evaluation Network
  • RWJ Aligning Systems 4 Action
  • RWJ County Health Rankings and Roadmaps
  • RTI International
  • SAMHSA – Substance Abuse and Mental Health Services Administration
  • Scan Foundation
  • Scattergood Foundation.
  • Senate [Special] Committee on Aging
  • Senate Committee on Appropriations
  • Senate Committee on the Budget
  • Senate Committee on Finance
  • Senate Committee on Health, Education, Labor, and Pensions
  • Senate Special Committee on Aging
  • Shirley Ryan NIDILRR funded HCBS RRTC
  • Simon & Company (Medicaid Non-Emergency Medical Transportation Coalition)
  • SNP (Special Needs Plans) Alliance
  • Social Security Administration
  • Social Determinants of Health Academy – (HRSA funded, Association of Clinicians for the Underserved led, 16 national organization collaborative)
  • Technical Assistance Collaborative (TAC)
  • Temple University, NIDILDD R&T Center on Persons with Psychiatric Disabilities
  • Temple University, Collaborative on Community Inclusion
  • The Arc
  •  Transportation Equity Caucus (jointly administered by Policy Link and Leadership Conference on Civil and Human Rights) -a coalition to create affordable transportation options for all people
  • Trust for America’s Health
  • University of California, Center for Digital Health
  • University of Chicago, NORC
  • University of Illinois at Chicago
  • University of Kentucky, College of Social Work, Mental Health and Developmental Disabilities National Training Center
  • University of Michigan, Center for Disability Health and Wellness
  • University of Minnesota, Institute on Community Integration
  • University of Montana, Rural Health Institute
  • University of New Hampshire, Institute on Disability
  • University of New Mexico – HRSA funded Project ECHO
  • University of South Carolina, HRSA funded Rural and Minority Health Research Center
  • University of Southern California, DSW students
  • University of Washington, Healthy Aging RRTC
  • Urban Institute
  • U.S. Access Board
  • USAging: (formerly n4a – National Association of Area Agencies on Aging)
  • US Census Bureau
  • US Interagency Council on Homelessness
  • White House
  • Yale University, School of Medicine, Program for Biomedical Ethics