A population-based assessment of the health, functional status, and consequent family impact among children with Down syndrome

Laura A. Schieve, Ph.D., Sheree L. Boulet, Dr.P.H., Michael D. Kogan, Ph.D., Kim Van Naarden-Braun, Ph.D., Coleen A. Boyle, Ph.D. Although the currently accepted terminology for mental retardation is “intellectual disability,” we use the term “mental retardation” in describing our results because this was the term used in the NS-CSHCN instrument and we wanted to […]

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Parenting aggravation and autism spectrum disorders: 2007 National Survey of Children’s Health

Laura A. Schieve, Sheree L. Boulet, Michael D. Kogan, Marshalyn Yeargin-Allsopp, Coleen A. Boyle, Susanna N. Visser, Stephen J. Blumberg, Catherine Rice Background Studies suggest autism spectrum disorders (ASDs) are associated with high parenting stress and aggravation. Research on specific risk factors is needed. Objective/Hypotheses To assess aggravation level among parents of children with and […]

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American Association on Health and Disability (AAHD) Launches National Disability Navigator Resource Collaborative to Support ACA Navigators

Press Release Rockville, MD  January 31, 2014 –The American Association on Health and Disability (AAHD) is pleased to announce the establishment of the National Disability Navigator Resource Collaborative (NDNRC). The NDNRC is an initiative aimed at providing cross-disability information and support to Navigators and other enrollment specialists thereby ensuring people with disabilities receive accurate information when […]

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National Disability Navigator Resource Collaborative Helps People with Disabilities Find Health Insurance

Navigators and other enrollment specialists can now access better information to help people with disabilities find health care coverage in the federal and state exchanges. The tools are cross-disability programs developed by the National Disability Navigator Resource Collaborative (NDNRC). The 12-month collaborative was made possible by a one-year grant from the Robert Wood Johnson Foundation. […]

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Factors associated with depression and anxiety in older adults with intellectual disabilities: results of the healthy ageing and intellectual disabilities study

Hermans H, Evenhuis HM.  Intellectual Disability Medicine, Department of General Practice, Erasmus University Medical Center Rotterdam, The Netherlands; Amarant, Healthcare Organization for People with Intellectual Disabilities, Tilburg, The Netherlands.  Int J Geriatr Psychiatry. 2013 Jul;28(7):691-9. doi: 10.1002/gps.3872. Epub 2012 Aug 8.’ OBJECTIVE: The objective of this article is to study which factors are associated with […]

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Treat me right, treat me equal: using national policy and legislation to create positive changes in local health services for people with intellectual disabilities

Roberts A, Townsend S, Morris J, Rushbrooke E, Greenhill B, Whitehead R, Matthews T, Golding L.  Doctorate in Clinical Psychology Programme, Division of Clinical Psychology, The University of Liverpool, Brownlow Hill, Liverpool, UK.  J Appl Res Intellect Disabil. 2013 Jan;26(1):14-25. doi: 10.1111/jar.12009. BACKGROUND: Creative use of legislation can produce positive change in the lives of […]

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Physical function and health status in aging Puerto Rican adults: the Boston Puerto Rican Health Study

Castaneda-Sceppa C, Price LL, Noel SE, Bassett Midle J, Falcon LM, Tucker KL.  Northeastern University, Boston, Massachusetts, USA.  J Aging Health. 2010 Aug;22(5):653-72. doi: 10.1177/0898264310366738. Epub 2010 May 21. OBJECTIVES: This article describes physical function in Puerto Rican older adults and examines associations between health status and physical function. It also assesses relationships between physical […]

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Racial and ethnic disparities in healthcare use, delayed care, and management of diabetes mellitus in older adults in California

Kim G, Ford KL, Chiriboga DA, Sorkin DH.  Center for Mental Health and Aging, University of Alabama, Tuscaloosa, Alabama 35487, USA. Giyeon.Kim@ua.edu.  J Am Geriatr Soc. 2012 Dec;60(12):2319-25. doi: 10.1111/jgs.12003. Epub 2012 Nov 29. This study examined racial and ethnic differences in healthcare use, delayed care, and management of care of older adults with a […]

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Effects of health screening for adults with intellectual disability: a pooled analysis

Lennox N, Ware R, Bain C, Taylor Gomez M, Cooper SA. Br J Gen Pract. 2011 Mar;61(584):193-6. doi: 10.3399/bjgp11X561186. SOURCE: Queensland Centre of Intellectual and Developmental Disability, School of Medicine, The University of Queensland, Mater Hospital, South Brisbane, Queensland, Australia. n.lennox@uq.edu.au Health screening has been shown to have beneficial effects on health outcomes in adults […]

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Measuring levels of citizen public health emergency preparedness, Jefferson County, Alabama

McCormick LC, Pevear J 3rd, Xie R. J Public Health Manag Pract. 2013 May-Jun;19(3):266-73. doi: 10.1097/PHH.0b013e318264ed8c. SOURCE:  Department of Health Care Organizations and Policy, University of Alabama at Birmingham School of Public Health, Birmingham, AL 35294, USA. lmccormick@uab.edu CONTEXT:  Recent disaster experiences in Alabama have highlighted the state’s public health vulnerabilities to natural disasters. To […]

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