Press Release Rockville, MD – A nationwide coalition of disability advocates celebrate the release of “No Research About Us Without Us “a statement endorsing the National Institutes of Health’s All of Us Research Program, an effort to engage more than one million people from across the United States in biomedical research to advance health care […]
Category: News to Use
All of Us Research Program Releases First Genomic Data, Creating Unprecedented Platform for Health Discoveries
Precision medicine effort leverages diverse participant base and innovative technology to drive new research The National Institutes of Health’s All of Us Research Program has made its initial genomic data available, bringing nearly 100,000 whole genome sequences onto its data analysis platform, the Researcher Workbench. The American Association on Health and Disability, along with our […]
AAHD staff quoted in National Journal article on HCBS
AAHD staff quoted in National Journal article on HCBS […]
AAHD Becomes Official Partner of HELEN
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Voices of All of Us: Stephen Mikita
Disability Advocate Stephen Mikita Pushes the Bounds and Helps Guide Medical Research “All of Us is not just about data points. It’s about listening to people’s lives. Life is a difficult proposition for everybody.”—Stephen Mikita, All of Us participant partner and retired assistant attorney general of Utah Stephen Mikita not only defied the odds, he redefined them. At […]
Celebrating the ADA this Disability Pride Month!
In honor of Disability Pride Month and the 32nd anniversary of the Americans with Disabilities Act on July 26, AAHD wants to highlight the importance of this landmark law that has greatly impacted the lives of people with disabilities. AAHD is interviewing Michael Hoenig, Dr. Lisa Iezzoni, and Dr. Amy Houtrow, who all serve as […]
How the All of Us Research Program Protects My Information
This video explains some of the ways the All of Us Research Program protects participant information—from data collection through research. It answers FAQs, touches on Certificates of Confidentiality, and describes what scientists can see in the Research Hub. Graphics explain data encryption and show an example of how participant information is de-identified. About the […]
All About the Social Determinants of Health
Addressing and improving health disparities begins with you COVID-19 has hit some communities very hard. That has put new attention on a long-term problem in the United States — health disparities. Health disparities are differences in health that harm disadvantaged communities. Understanding what causes these differences is key to addressing them. DNA alone does […]
AAHD Announces Scholarship Awards 2022
The AAHD Scholarship Committee and AAHD Board of Directors are pleased to announce the recipients of the 2021-2022 AAHD Scholarship Program. On behalf of the board and staff of AAHD, we congratulate the winners and wish them the best of luck in their studies. The 2021-2022 Scholarship Recipients are: Madelyn Hubbs, Maryville University Ma’ayan Simon, CUNY School […]
Series Recap: Getting the Most from your Health Insurance
This spring, we hosted a series of live interviews with disability community members to learn how they make the most of their private or public insurance coverage. Watch the full series to learn more about their tips and tricks for accessing care. Rehabilitation/Habilitation A conversation with Chase Bearden, Deputy Director of the Coalition of Texans […]